Anybody out there on Sprycel (dasatinib)? I was on Gleevec approximately 7-months. After seeing a 2nd opinion doc and having a 2nd bone marrow test, I was told the Gleevec was not doing what it was suppose to be doing. Therefore, I was put on Sprycel. Side effects for me are headaches every morning and fatigue, but the biggest problem is my platelets dropping significantly. I was put on 100 mg of Sprycel and they dropped, in 4-weeks to 49,000. Furthermore, my whites dropped to 3.8 in the 4-weeks time. I'm now on 50mg's. I was wondering if anyone else is going or has gone thru the same thing? Thanks for any input.
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I was diagnosed with CML 18 months ago. I am on Gleevec and it has my numbers cancer cell numbers at less than .003 and the doctor is pleased. 2 months ago I went from 300 mg to 200 mg and feel much better...but have only 8 good hours a day. My endurance for any exercise is about 1/2 hour and can't begin to do what I used to do. Not finding any information about how I might feel and the Doc...
ive had Cml for several years now and had some horrible experiences leading up to diagnosis that are lengthy. My thing is gleevek was successful but caused horrible muscle cramping so I was switched to sprycel which had less side effects but more expensive so insurance doesn't want you to have it. My counts are normal now but I have incredible bone and joint pain. I've been to rheumatologist and...
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