Husband Diagnosed May 2011
Hi, MY 31 year old husband was diagnosed this month with CML. We have a 6 month old son and a 20 month old daughter. My husband was the strongest most postive person I have ever met in my life. When he was first diagnosed he seemed so super storng and felt as if he was oging to beat this thing. It has been about 3 weeks and I feel like he is getting veyr bitter and angry constantly saying he hates his life and has the worst luck. My heart is breaking seeing him like this and I never know if I shoul push him to do things or leave him alone. Yesterday I forced him to go to a memorial day bbq rather than sleeping on the couch all day and he blamed me for not feeling good at night. Said he hates seeing eveyrone else healthy and playing sports where he feels like he cant do anything. The heat seems to bother him a lot and he gets light headed often. He is in Tasigna whish is the sister drug for GLEEVIC... The new generation and suppose to have less side effects. I guess I was hopeing that maybe some people with CML can help me understnad how to deal with my husbands terrible mood swings and what seems to be changing whom he is. Should i puss him to go do noraml everyday things or is it better to leave him to decide. I feel like in the last month my perfect life has been taken from our family. I feel lonely, scared, and most of all HELPLESS!
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I was diagnosed with CML 18 months ago. I am on Gleevec and it has my numbers cancer cell numbers at less than .003 and the doctor is pleased. 2 months ago I went from 300 mg to 200 mg and feel much better...but have only 8 good hours a day. My endurance for any exercise is about 1/2 hour and can't begin to do what I used to do. Not finding any information about how I might feel and the Doc...
ive had Cml for several years now and had some horrible experiences leading up to diagnosis that are lengthy. My thing is gleevek was successful but caused horrible muscle cramping so I was switched to sprycel which had less side effects but more expensive so insurance doesn't want you to have it. My counts are normal now but I have incredible bone and joint pain. I've been to rheumatologist and...
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