Just curious about how long does it take to achieve complete remission with CML. My husband was dx with CML about a year ago with 80% cancer cells. He was taking the sprycel for about 9 months and then stopped because of side effects. He's been taking the gleevec for about 3 months and its been working. His last FISH test was about 3 months ago. Tests showed less than 1% cancer cells. He just had another test last week and it was about the same as last time. Doctor was very happy. Doctor said he was having a Major molecular response but not yet a complete remission. I assume all is well. How long does it take for remission to come???
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I was diagnosed the Monday after the 4th of July 2015. I was started on Gleevac and was taken off because it didn't "work as well as they thought it should". I was then put on Nilotanib which caused me to be hospitised for pancreatitis and Liver issues after one week. I was then put on Sprycell which worked for a year but then started causing fluid on my lungs. I had to have my chest...
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I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
Diagnosed in dec 2015. put on sprycel for a month but had so many side effects I was taken off and put on gleevec. I have had really bad night sweats but now it seems the sweats happen ALL the time. It's crazy. asked dr and he says it may be hormonal but I have already gone through menopause a long time ago. Anyone else bothered with this and if so how can I best cope? Im in an LOA from work...