Newly Diagnosed and feeling a little lost
I am a 45 year old female who was diagnosed with CLL on Monday. I have yet to see an oncologist but have some questions that I am hoping someone can give me some insight on. I guess my biggest question is that I noticed on my papers from the doctor that 70% of my lymphocytes are phenotypically abnormal. Hmm 70 % sure seems like a lot to me. I was told by my family doctor that I am a stage 0 but feel more like a stage 2. I am currently having pain in both of my sides and had no clue until I started investigating this disease that each side is where my liver and spleen is. I go for an ultrasound on my spleen in a few days to see if its enlarged. Can someone tell me how the doctor can know what stage you are by looking at the cell count? I am apparently B cell CLL from what the doctor explained to me. I am not experiencing any symptoms except the pains I mentioned previously and a rash of dizzy spells that seem to come and go. Some days they are non existent and other days they are worse. Not debilitating by any means, just a kind of "woah, better grab on to something to steady myself" kind of dizzy. I had a brain tumor in 1999 and it was removed successfully. It was not cancerous, rather it was a tumor called a colloid cyst. Have felt great ever since I had it removed. I am also experiencing extreme exhaustion and cant seem to summon up any energy. Anyone have any advice? Surely appreciate it.. thanks!
Popular Posts In This Group:
I started treatment for CLL on October 26, 2015. Lymph nodes were so swollen in my neck that it was almost even with my ears. After only 3 weeks on ibrutinib, my neck was normal size as well as under my arms and I am sure all over my body.I am wondering if anyone else has been given this treatment, and if so, were there any side effects. The only one that I have had is high white count which...
Posts You May Be Interested In:
I had to have a lung biopsy, and I have cancer. A very rare form that doesn't have any standard treatment. There just isn't a lot of case history for this. It is epithelioid hemangio endothelioma. The cancer support group doesn't talk every day. I can understand why. I'm waiting for the oncologist to call back for an appointment, and will hear in the next few days. Who knew. Ha!
It's so hard dealing with pain especially when you don't get any support from the person who your supposed to be closest to. So hard when your trying to deal with pain and that person treats you worse than the pain. Having hard time understanding why. unless you are having a good Day you are treated like crap and they make you feel worthless.