Newly Diagnosed and feeling a little lost
I am a 45 year old female who was diagnosed with CLL on Monday. I have yet to see an oncologist but have some questions that I am hoping someone can give me some insight on. I guess my biggest question is that I noticed on my papers from the doctor that 70% of my lymphocytes are phenotypically abnormal. Hmm 70 % sure seems like a lot to me. I was told by my family doctor that I am a stage 0 but feel more like a stage 2. I am currently having pain in both of my sides and had no clue until I started investigating this disease that each side is where my liver and spleen is. I go for an ultrasound on my spleen in a few days to see if its enlarged. Can someone tell me how the doctor can know what stage you are by looking at the cell count? I am apparently B cell CLL from what the doctor explained to me. I am not experiencing any symptoms except the pains I mentioned previously and a rash of dizzy spells that seem to come and go. Some days they are non existent and other days they are worse. Not debilitating by any means, just a kind of "woah, better grab on to something to steady myself" kind of dizzy. I had a brain tumor in 1999 and it was removed successfully. It was not cancerous, rather it was a tumor called a colloid cyst. Have felt great ever since I had it removed. I am also experiencing extreme exhaustion and cant seem to summon up any energy. Anyone have any advice? Surely appreciate it.. thanks!