I love it. I find myself jumping to people's profiles over and over again after reading a posting because I want to put together the story of this person I am coming to like but can't meet. I always feel like i want to ask more questions about them.Confidentiality/privacy might be an issue though.

Would this mean DS has to create a section on the site or can we just do it under discussion or in our journals?

Great idea!

I love to write, when I can think straight. Yes it would be nice to know the stories. How long, what they think brought it on, how the progression has been. What hope or peace they have found.

Yes. Where are our stories?!

Where are our defining moments?

I think we would need to do it here, under discussion. Unless we only wanted our circumstances known to our "friends." Don't know for sure.

Another thought. On our profile pages there is both a column on the right hand side where we list our communities and then in the profile part there's an "about me." I think I'm going to change what I've written under Chronic Fatigue to include how I got where I am today. (In short form.)

stories are stories, I just know that everyone coming here has a health issue, I don't need to know specific's. CFS is a pain in the butt disease. thats all i know.

Mike, because we have to be our own advocates and because we pretty much only have each other, I feel called to help others on this board and think some others here feel the same way.

As I look for answers or helpful suggestions I'd prefer to be able to turn to those with similar symptoms ... and as we all know, CFIDS has a wide range from which to choose ... and they seem to come and go at will. Every day we don't know what might hit us.

Cancer. Many different kinds. Heart disease. Many different kinds. If I had breast cancer and wanted to ask specific questions would I go to a doctor who treats, or individual who had prostate cancer? Of course not. I would want to talk to someone who had circumstances similar to my own.

Agreed ... this is a "pain in the butt" disease. But I choose to stay as informed as I can ... and that included utilizing the information available here. I want to learn from ALL including those who travel the same journey.

Good idea. I agree with you wholeheartedly! I also believe there is some healing through the encouragement we receive here. Maybe not physical healing, but I have no doubt it can certainly lead to that. Reading our stories through someone else is so comforting. I'm on!

fantastic idea, since we all have stories and some are or will be helpful to others.

I just finished the book "You Don't Look Sick" and another called "Sick and Tired of Feeling Sick and Tired."

I found much comfort and affirmation in the first book, as she shared her story and how she struggled with her illness.

The 2nd book went way more in depth and asked the reader to delve deep and face their narrative. Whatever your story(or script) is, you can rewrite it but the first step is being aware of what it is.

Our stories tell a lot about us and I like the idea of having somewhere to post them. ^_^

It can be a little tuff since not everyone can read/write long entries, but I think it would nice to have a place to tell my story if I wanted.

Probly more descriptive of who I am than what I have up in my profile.

Hmmmm, wonder how we could do it....

I think having a place to tell our stories would be a good idea, because profiles are more for getting to know a person as a person not a disease. But since cfs effects people differently, and there is very little understanding of where it comes from I think it would be good to be able to reconize the simularities in our stories.

P.S. sorry if this message is hard to understand, I'm trying to compete with dh's drum playing. As if my focus isn't bad enough.

so when do we start??

Very soon!

Yup ... what she said. Maybe Monday????