Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
This was written by Elaine Aron and I'm wondering how many of you have read it ... and if so, if you consider yourself to be one. Me? Oh yeah. I would hazard a guess that MANY of you are just based on the little I know of you. HSP can very much be driven Type A's but are also almost exquisitely sensitive to their environments.
I think of all the beaders we have online here. Of Prairie and her photos, etc. etc. I'm a rabid fiber arts enthusiast. LOTS of highly creative, artistic types here.
Anyways ... I'm especially tingly today (rough week) and even my TONGUE feels like it's buzzing. I happened to google CFIDS tongue and this popped up:
Check it out: http://oneearthherbs.squarespace.com/diseases/chronic-fatigue-syndrome-and-fibromyalgia-cfids.html
This is sooooo "us."
I think of all the beaders we have online here. Of Prairie and her photos, etc. etc. I'm a rabid fiber arts enthusiast. LOTS of highly creative, artistic types here.
Anyways ... I'm especially tingly today (rough week) and even my TONGUE feels like it's buzzing. I happened to google CFIDS tongue and this popped up:
Check it out: http://oneearthherbs.squarespace.com/diseases/chronic-fatigue-syndrome-and-fibromyalgia-cfids.html
This is sooooo "us."
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
We're canaries in a mine, I'm telling you! Of course we'll all be gone by the time there is a cure for this but THINK of the bodies of research available through us!
Ok. Just got morbid.
As it happens, CSM has long been used in agriculture to bind toxins in farm animals - toxins they get from consuming moldy feed. Funny how that all works out, isn't it? That animals are treated better than humans in some ways.
Too bad the doc on that website quoted Wessley, of all people. And too bad the doctor who wrote the article doesn't describe the nature of those horses prior to the experiment, because it becomes a real chicken and egg question. Are we this 'Type A' thing because of stress? Or do we simply respond to life and challenges this way because we have been loading up on these toxins from conception? We know that some of these vulnerabilities are inherited. But we don't know why so many of us also have Ehlers-Danlos Syndrome, which is very definitely inherited. So which traits go with which traits, genetically-speaking? And if that's where those driver types of traits also come from, then telling us to relax and take a chill pill is like telling a leopard to change his spots - because it's not ok to be 'that kind of leopard'. Or, maybe we become this way because the illness begins long before we see it as an illness, and this is just how we respond to things because we are already struggling harder than
the 'normal' types - whatever that is. That last answer is the one that feels right to me, but I can't prove it any more than the people who claim to know better.
I've been betting for a long time (since I'm a betting woman and nobody can prove this either way) that, given what we encounter in most doctor's offices? Nobody BUT the overachiever types were going to get anywhere with those guys. In epidemiological terms, that's called a self-selected (and therefore most likely over-represented) group. Who do we know? Others like us who will fire up a keyboard and have something to say about it all - in internet marketing, if you get 1 or 2% active talkers in any given group, you're succeeding beautifully. So, we're self-selected yet again. Round and round she goes!
It IS so us - but why it is? Endlessly fascinating. (I did the Vulcan thing when I typed that ; )
I do know that detoxing can help get that nerve sensitivity stuff under better control. That's why I'm thinking the direction I am, really. (But I ain't changing my spots for no zookeeper.)
Good article! Thanks.
Eggsactly.
Weebs ... speak up, girly. I need to talk about the "stress" markers!!! I loved listening to you talk about it but am not comfortable giving my own dissertation!
As an adoptee I've grown up with the nature/nurture question all my life. Definitely both ... but since becoming a mother 27 years ago I'd have to say if I could ONLY pick one I'd have to go for NATURE every single time.