
Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

deleted_user
Was wondering how many have thought about this.
While most people's reaction is to be against it at all costs, does your pain/suffering ever become too much and you feel you just can't bare much more? It's easy to say you shouldn't consider it when you're not the one suffering. But without any cure in site for CFS, and the daily stuggle to just make it through the next hour, eventually you ask yourself, "What's the point?"
Any thoughts on this taboo subject?
While most people's reaction is to be against it at all costs, does your pain/suffering ever become too much and you feel you just can't bare much more? It's easy to say you shouldn't consider it when you're not the one suffering. But without any cure in site for CFS, and the daily stuggle to just make it through the next hour, eventually you ask yourself, "What's the point?"
Any thoughts on this taboo subject?
Posts You May Be Interested In
-
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
-
Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...
Besides, I hold out the hope that a big medical announcement re: CFS being REAL will soon be made, and if I weren't here, I wouldn't be able to have the official SMUG look on my face as I brandish the clue bat and say to mine enemies, "See? NOW I don't have to HIT you with THIS!!!"
I would regret leaving the children and grandchildren; but there are so many people "over there" inc my husband; that i would be ok with it.
I would never take my own life, cause i would not do that to my family, and have them live with that guilt, of; what more could we have done?
I will try to send this group a site to go to , a newspaper in Ohio, made some awful remarks about CFS; and so far there have been almost 100 replys to the editor from people with CFS. A lot of talk about suicide.
Well, a few months back, when the pain levels really elevated, and I learned it was Fibro, and I could be hurting like this the rest of my life, I did get depressed, and a result of that depression was thoughts of What If...
I wasn't around
I wasn't a burden to my husband
I wasn't a sudden "boring" Mom
I wasn't.......
Very scary, but Never have I made a plan or even considered the act, but yes, the what ifs have me sometime....and
And to all that take it a step further, and start making plans, REACH OUT..to your doctor, spouse, parent, clergyman(or woman), neighbor, hospital emergency room...Hugs, Cathi
"My mother never saw the irony of calling me a son of a bitch."
On religious wars: "You're basically killing each other to see who's got the better imaginary friend."
And the telling: "The way I see life, it's like we're all flying on the Hindenburg, why fight over the window seats?"
You can read a tribute to him here:
http://www.huffingtonpost.com/elayne-boosler/remembering-comedian-rich_b_43155.html
And the Wreck of the Edmund Fitzgerald...about healthcare insurance.
I always liked Jeni's willingness to approach the dark stuff. He'll be missed.
I don't think all suicides = depression. Some people rush into burning buildings. So people go to war. Some people go involuntarily because their bodies stop working. Some people just decide they're done being here.
Like they say, you can die in the stands, or you can die on the field. The first time I was sick with this, I sat in a chair for 2 years with a loaded pistol within arm's reach. Depression, but organically caused by untreated illness. I'm lucky to have survived it. None of us who got this far did it alone.
Today I'm on the field...because _I_ choose it. Slowly, sporadically, and miserably at times. But better this than see anyone go through that kind of hell ever again. So if I don't make it by any chance, please don't ever say I was depressed. Say I went to war against greedy insurers and slacker bureacrats over this illness and lost. We're very, very close now. It's almost a game of Beat the Clock. If you hang in, you WILL win.
I am a very positive Fighting Irish person. I refuse to let my maladies/syndromes win. I have a wonderful life but it is NOT my old life. Some ways it is a better life some ways not.
I am forever changed but by being forever changed, I have changed into a better person.
Who knows, whatever brought on the whatever may just disappear as suddenly as it began.
Diet plays a big part for me. Found out that certain things set me off. See, it's not about "surviving" but thinking outside the box and being pro-active.