Hi everybody! Glad I found you!! Been reading all day, good stuff! My problem is, how do I get my doctor to take me seriously? Great guy, thought he cared, but saw him last Thursday and I felt like he just blew me off. Could have been a bad day, don't know. Anyway, called him in June to get a script for blood work on epstein bar. Got it, and yes, I did have it at one point, but not then. I was maxed out with fatigue. When I saw him earlier this week, again maxed out, he didn't even check my glands or throat. It was like,what the sh?$%t. He said something about it being fibromyalgia and I'm getting my blood work done probably Monday. Not sure if it will show anything. I've been doing research when I felt up to it, been out sick since Tuesday, and jumping around through the diseases. I could have a gluten disorder or just plain ol' CFS. I have been diagnosed with cyclical neutropenia, and really need to be taken seriously. Neutropenia is a bone marrow condition where I don't always produce enough white cells to protect me. I was cycling ever 6months. Generally hospitalized for 2 weeks and home for another 4 weeks, then cycle again. Great fun! This happened just before I was turning 40. Anyway, I'm getting on the merry-go-round again. Any suggestions would be great. Thanks for listening and being here!!!
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