
Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
senativity to light that makes u feel an alien

deleted_user
dont really know where to start i have pain from head to toe that never goes away im so ill and feel so depressed ive had this for years now , and feel i cant take anther second pain killers dont help pain and im on a/d that dont take away the desperation i feel so alone and ill, does anyone else have this symtom of nreality the light makes me feel so unreal it drives me mad its hard to explain but for years now ive felt an alien i keep my crtains closed most of the time i feel like im not here not human like i dont no who or what i am anymore if that makes sense please please if anyone understands this or feels as desperate as me get bk to me as i feel i cant fght all these feelngs anymore im just too ill and depressed and feel like nothing is ever gonna get better please help x
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I'm so sorry you are depressed right now. I didn't see anything on your profile about a good medication for that.
Please speak to your Dr. about these feelings of lonliness and feeling so helpless. It's not healthy for you to feel this way. The folks on this site will give lots of advice and support, but your doctor has to check you out to be sure there is nothing wrong with your eyes. If you think it's just the lights that are making you crazy right now, then just keep the curtains closed as you are doing. I just want you to know that a lot of us are sensitive to light and try to avoid it.
Please don't feel lonely, just talk about your problems to us and to your doctor, between the bunch of us, we can help you, I'm sure. Blessings to you today. I will pray for some peace and healing for you.
Sincerely DarlaC
I have worn tinted glasses INDOORS for YEARS. Can't survive under fluorescent lights or look at computer screens or TV screens without them. Have no lights on during the day at home.
As for the desperation, I agree with the other people, if there is a medical professional whom you can trust you should go . . . .
I feel the same way today but can only look to all of you on DS for help (and thank goodness for all of you and DS) because I'm in the U.S.A. and therefore can't get any kind of health care because have no money left.
I warn anyone in the U.S. not to go to a county-run crisis center for counseling because chances are the workers are incompetent, ill-trained and certainly won't understand the desperation of having CFS. I know because in a fit of desperation and panic I went to a county crisis center to ask for counseling on coping techniques so that I could think to SAVE MY LIFE. The people didn't hear a word I said except panic and depression--they heard nothing about the CAUSE, which is that I'm in a financial mess because I can't work due to CFS--AND THEY LOCKED ME UP AGAINST MY WILL IN A MEDIEVAL HOLE FOR 2 DAYS. I even told them I wasn't suicidal. They ignored my physical symptoms, refused to allow me to lie down, manhandled me and put me in "solitary" for refusing to do coloring books all day because that's what mentally ill people are supposed to do--and gave me none of my medications like for hypothyroidism and high blood pressure, etc., (everything PHYSICAL.) I AM MORE TRAUMATIZED THAN EVER. I need counseling just like you do but can't go anywhere because all charities say I have to go back to the county and obviously they didn't exactly "help" me. SO THANK GOODNESS you are in GRB and not in the U.S. BUT DO MAKE SURE the help you seek out can be trusted not to do something like that!
I really hope you grab hold of something and ride out this desperation like a weatherman reporting in a hurricane . . . .it will pass somewhat. . . . until then please know you are in so many people's thoughts.
all the best
aj
Mandy
If your still in that much pain on pain killers you might want to get a second oppinion, by trying a new doctor or an alternative doctor. I was in so much pain to but Quantum bio-feedback god rid of mine and walking even though it killed me at first helps in the long run and so does stretching my legs out a couple times a day especially if I am really active a certain day.
Pain is a big part of causing depression and I think you need to improve your health in order to have a better outlook. Getting a little better or at least trying to will give you a slightly better outlook.
Talk to your doctor because you quality of life should be better and it can be if you find what works for you.
You might try soaking in hot baths and put in epsom salt. That helped me. They have it at walmart and a few other bath things for pain in certain isles...like the ones with lotion etc.
Good luck. You can get better. Just dont forget that and dont ever stop trying.
If you need anything or want to know what is curing me just send me a message im always thrilled to help.
I'll probably never visit Las Vegas again, or any place that calls itself the city of lights. The last time I went, I just wanted to sleep the whole time. Flashing lights are the worst. Fluorescent lights give me migraines.
I covered all my windows with total block vertical blinds. I never go out without sunglasses and hat and all of my clothing has long sleeves.
My best defense against depression is distraction. A good book, tv, a movie, housework, anything productive. I play happy music and dance. I make up silly chores for myself and talk to the wild birds who visit my tiny flower garden. Exercise helps a lot, too. I can't always go to the gym, though, or walking in the park. There are just some periods when movement is counter-productive. When this happens I go on depression alert and practice some breathing exercises.
If anything, CFS is inconsistent. Soon the depression will ease up and you'll have something else to deal with. Sigh!
The symptoms are really bad, but it's our tendency to over-react that makes it all so much worse. I think that's due to chemical imbalances in our dysfunctional endocrine systems.
If you can find some way to calm down and get out of this perpetual panic attack you are in, things would be much better for you. I know, I've been there many times.
I hope you find a competent physician to help you, or a way to calm yourself down. It won't make it all go away, but it may help you deal with it and make you feel better compared to where you are now.