
Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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Hey
I have been suffering from chronic fatigue, muscle pain, concentration problems, temperature regulation and other problems for nearly 8 years, and just last week I finally got my doctor to admit it was probably ME/CFS. He is going to refer me to the specialist but its a 12 month waiting list and I'm at a complete loss as to what to do! I'm in the second year of my doctorate, and I love what I do, but I simply can't carry on much longer - I'm forcing myself to go through the motions at the moment cos I really don't want to lose this opportunity, and I've always pushed myself very hard, so noone ever actually believes how bad I am feeling. Last year I had an immune crash and spent six months going in and out of hospital for various things, and I just can't do that again. I have no idea how to manage this condition, and I know its not going to be a miracle cure, but I need a starting point, and now I need to wait another year to see the specialist!!! I can't really afford provate health care, and the thought of taking a sabbatical from work turns me cold - I'm the sort of person who is much better off keeping busy. I feel so alone, my family are supportive but don't live very close, and I don't know if I should tell my supervisor at work - its not the first time we will have had to have had a 'little chat' this year, i've had a run of bad luck, and I don't want to feel like I'm just taking the piss. Anyone got any advice?
I have been suffering from chronic fatigue, muscle pain, concentration problems, temperature regulation and other problems for nearly 8 years, and just last week I finally got my doctor to admit it was probably ME/CFS. He is going to refer me to the specialist but its a 12 month waiting list and I'm at a complete loss as to what to do! I'm in the second year of my doctorate, and I love what I do, but I simply can't carry on much longer - I'm forcing myself to go through the motions at the moment cos I really don't want to lose this opportunity, and I've always pushed myself very hard, so noone ever actually believes how bad I am feeling. Last year I had an immune crash and spent six months going in and out of hospital for various things, and I just can't do that again. I have no idea how to manage this condition, and I know its not going to be a miracle cure, but I need a starting point, and now I need to wait another year to see the specialist!!! I can't really afford provate health care, and the thought of taking a sabbatical from work turns me cold - I'm the sort of person who is much better off keeping busy. I feel so alone, my family are supportive but don't live very close, and I don't know if I should tell my supervisor at work - its not the first time we will have had to have had a 'little chat' this year, i've had a run of bad luck, and I don't want to feel like I'm just taking the piss. Anyone got any advice?
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It shouldn't take a year to see a specialist. That's awful. Maybe since your MD believes you have CFS you should try and treat your body as though you do. That means you must cut back on your schedule.
I feel so badly for you because you are in the middle of your education, but right now, I think you have to listen to your body. When you get the rest you really need, you will be able to think more clearly and make some decisions. I think I would speak to my supervisor and just be totally honest about what you are going through. You may be surprised at how supportive he/she is. We are here for you. Blessings today, DarlaC
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