Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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/ Chronic Fatigue Syndrome Support Group

Really realyy tough day

deleted_user
deleted_user
I'm so far down in the pit today. I think my CFS has kicked into overdrive. Yesterday after I had preached twice and headed a stupid meeting I drove home 35 miles and collasped! DD took me today to Sam's club to shop for an open house at my place in 2 weeks. I used electric cart, she drove, she pack everything in the car,undpacked it all and put it away and I am the one that collasped again for 5hrs. I'm so sick and tired of being sick and tired. And I'm tired of pretending that its ok I'll get thru this cycle too. there seems to be less time between the cycles and I don't seem to get back where I started from. Sorry - guess i'm having a pity party. Maybe tomorrow will be a better day.
DarlaC
DarlaC
You are entitled to a pity party any time you need it. I have days like that too. Then we wait and wait for a "good day" and it seems longer and longer until it comes. Am I right?
You have a very full life. The preaching uses your brain and your emotions and the driving is tiring, so there's no time or energy left for loading and unloading. Maybe there's a way for you to slow down a bit.
I will pray for strength for you and that you will be able to pace yourself so your good days will be even better!
deleted_user
deleted_user
Please feel OK about whining a bit here & there. The preaching is huge for one with CFS. I do nothing except rest and exercise when I can...lately that hasn't been often. My hat is off to you, my friend. With all you are doing its no wonder you're exhausted. Rest up and things will look better. Love & hugs
2DanceAgain
2DanceAgain
Whine all you want. That's one of the purposes of a support group. It is a place to vent. People without CFS don't realize how much energy is required to just think and speak. Most people just think physical when they hear the word fatigue. Using our brain requires lots of energy. Gotta go know, running out of energy from thinking and typing.
deleted_user
deleted_user
I hear you .... we're tired of being "us." Come vent ANY time ... we totally get it.
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