
Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

deleted_user
I find people,even those close to me sometimes, don't believe me when I am ill sometimes - like 'you can't have caught ANOTHER cold' or 'you can't have had a ANOTHER bad test result' or 'you can't be in THAT much pain cos you walked to the shop' etc etc...it's so frustrating!Cos we are ill A LOT cos of this condition I find people as u go on stop believing you, even people close to you.
I admit that personally I overreact a lot, but that comes from years of frsutration from docs/nurses giving me test after test. Someone close to me called me a 'liar' the other day and it hurt me really deeply...
Does anyone else find this? Even with close ones?
I admit that personally I overreact a lot, but that comes from years of frsutration from docs/nurses giving me test after test. Someone close to me called me a 'liar' the other day and it hurt me really deeply...
Does anyone else find this? Even with close ones?
Posts You May Be Interested In
-
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
-
I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
So you take a stupid word like fatigue, which normal people feel after a bad day at work, and the fact that we don't look like we're dying and those things pertetuate this misconception that we are functioning individuals looking for an easy out. It's cruel that we are treated that way, but as I said, they see us looking well and claiming chronic fatigue, and they go from there. It's stupid. But I think this is why we are mistreated so badly.
It's really, really stupid.
I also agree with arbgrandma
I don't really understand my illness so how can others.
I know it's hard. I know it hurts like hell. But these are NOT friends. Put them on the acquaintance list or banish them altogether. But don't allow them to confuse you. It's just not their misundertanding and cruelty that negatively impacts you so - it's your own innocent trust and unrealistic expectations. When you get that part straightened out, you'll fill those spots with real friends and be glad you did. You'll probably find some of them right here, if you care to look. And in your 'skin' life as well, though they're a bit harder to find when you don't get out much. But they'll be much better because they don't come with conditions like, "I'll like you only as long as you are like me and do what I want you to do."
I find, like others here, that I do still have friends these days - but not a healthy, injury-free, unscarred soul in the lot of them. Each and every friend I have today suffers some disability, visible or invisible. They have what I call Gimp Soul. They've walked through the fire, they know what suffering looks like and feels like, and they simply connect to us without all the judgments. From them, I sometimes get useless or even wrong advice, but never the judgment, never someone deciding whether you are worthy or not. You just learn where to invest yourself better, and the returns are more than excellent.
HOW you choose to blow off the non-qualifiers is a matter of style and taste (or lack thereof - hee!). I like to start with rant flambe for appetizers, then filet of ignoramus as a main course, and finish it off with warm friends and chocolate...but that's just me. If someone screws with your head, just screw with theirs right back (leaving abruptly is the simplest way, if possible), and immediately go do something nice for someone who will appreciate it - even a small thing. That's how you take your power and your self-worth back. You're not lazy. You just need to hang with a better class of people, that's all. ; )