i was talking to a coeworker, Deb, i just found out that they had Celiac and we were disscussing the diffrences between her condition and mine. I knew alot about Celiac but she knew next to nothing about CFS so i educated her in the only way i know how (the disease being still pretty new to myself) I explained about the everyday tiredneaa and the inability to do even normal tasks somedays because you are just too drained. How i really have to limit what i do and make sure i'm getting my body the breaks it deserves. And through all our talk another coe worker, Ida, walks up and begins listen. and as i was talking about what CFS and how to treat it best we can with little knowledge we have. Ida decideds to interject her and say "well that just sounds like a lazy persons disease". i was appaled, I couldn't find any words to say. and for the rest of the night i just did work not talking to anyone. The shock of the somment hurt me badlly. I know that there will be people who don't understand at all and people who try to understand but really don't. Most of my close friends are this way, however to have someone say that to me just made sad, because she was so blocked to what i was saying about the everyday pain and suffering she just caught on to the fact that i had to take naps and was tired. effectivly that i was lazy and that was all. it just hurt me so much because at this time i was soo close to hospitilisation for the amout of work i was trying to do to complete high school and go on to college. I just wish people like Ida could be eduacated so she dosn't make a foul out of herself again.
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