yes mandy i have the same problem to the point of i know im not putting alot of pressure on my arms but they ache and then go tingly like you said feels like no blood supply that can happen to me jus by holding a cup of tea how bout you?

yeah,even brushing my hair makes them go numb

I have this problem mostly when exposed to chemicals, such as fragrances or cleansers, lawn chemicals. I do suffer from Raynaud's Syndrome, but that affects my hands and fingers the most.

YES! It comes and goes ... if I leave my arm in one position for too long my hands go numb. I particularly have trouble with my pinkie fingers. This summer, while REALLY in the throes of a rotten CFIDS round I would wake up with my entire arms numb (up to the shoulders.) Scared the shit out of me.

Yes I get pins and needles down to my elbows and from my feet up to my knees with ocasionally numb hands. Mostly little and ring fingers.Prior to being diagnosed with Sjogrens it really woried me as I didn't have a clue what was causing it. People with rapid onset CFS trigered by a Virus frequantly have difficulty raising their arms above their head as the virus which leaves them with meningism. I dont know of the particular medical term but I think its parallel to Nuchal rigidity which is when you cant move your head forward. You see the Virus often causes abnormalities in the immune system, the brain, the hypothalamic-pituitary-adrenal (HPA) axis, the cardiovascular system, the autonomic nervous system, and the endocrine system of CFS patients. The HPA Axis and the Vertebrae C1 to C7 are really signifigant in most CFS cases. Often the virus that trigers CFS seames to enflame streach and spread the meninges that sheath the spinal cord. The pia or pia mater is attached to (nearest) the brain or the spinal cord. As such it follows all the minor contours of the brain (gyri and sulci). The pia mater is the meningeal envelope which firmly adheres to the surface of the brain and spinal cord. Your Shoulder movments actuate through Vertebrae C7 and T1. C7and T1 are next to each other.
Do you have any Thyroid issues?
I think I remember GraceAnn from the Fibromyalgia group saying the same thing. Might be worth placing the same post on the Fibro board, or email GraceAnn.
Alternativly have you seen a Chiropractor? They often seem to help and this comes from someone who up until this year thaught all Chiro's were bad because I listened to Physiotherapists and their interdisiplinary rivalism.
Hope theres something here to help.
Cheers
Ali5tair

OMG!!! It just started 4 days ago........from my left shoulder down through my hand, it has felt like it is going to sleep and tingling!! Have been worried, sign on and the first thing I see is this discussion!! I have stents that were put in about 10 years ago in my left subclavians and was wondering if they had collapsed. Even my shoulder hurts!!!

same here.been that way for a couple years. i have barely any feeling left in my fingertips..

I get it mainly at night. Even when i know i haven't been lying on them... i also get it when i wash my hair and brush it etc. it feels like they're going to fall off! It's a really nasty and annoying symptom, quite disorientating too!

Mine is getting worse daily...today damn painful..am so weary of it being a different body part every day

Just out of my own experience lately.....I have the numbness, then pain and tingling in my fingers. Swelling too. I recently had a severe change in my thyroid and that seems to be the culprit. Have any of you had the thyroid checked out? Just a thought.

Yes..........March 29th being the last :(

I get this alot as well. I had one very scary episode where when sitting on the toilet, I lost feeling of my legs. They literally felt missing. I could not get help up, so I used my handicap bars that was put up by the previous owners (thank goodness we didn't take them down while remodeling)to a standing position. However, I could not bear any weight and fell over face first almost hitting my head on the facet. Horribly scary feeling---or lack of feeling. Someone referred to this phenomeon as sleep paralysis----I have not looked it up so I am not sure. I just know it is dang scary. I had to literally drag one leg at a time using my hands/arms pulling them while balancing on the towel racks with the other hand/arm until I could get to the door and call out for my husband. I guess the other option would have been just to lay on the floor and belly crawl to the door. I don't know what causes this to happen. My arms have done this several times. I usually wake up with one or the other missing. A couple of time I have woke up with both arms and hands missing and had to wake my husband to find them for me. It is a scaring feeling when you have to look to find out if you still all attached.

Oh, I guess I wasn't done writting. There has been a couple times when I will be doing something or carrying an object and all of the sudden my arm or hand will just drop it. I swear sometimes my extremities have minds of their own. Sometimes when I am walking I will tell my right leg to "jig" and it "jogs" another direction. At least that how I joke about it when it happens out in public or at work and someone notices it. Or I will say "Hey did you see that wall just jump out and try to bite (or hug) me." Usually people just laugh along with me. I try not to carry drinks in cups any more. I just carry drinks that have secured lids on them because I have dropped so many of them and clean up the mess on a bad day on the floor is a really --itch!! If you know what I mean. (excuse my intended language)

thank you so much for all your reply's.gonna visit the doc this week.will let you know of any information i get.