Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Hi everyone I'm new here and have been lurking. I'm so happy to have found this site. I'm only 31 years old and a mom to 7 & 3 year old daughters (homeschooled). I believe I have CFS, but it's undiagnosed. I tend to crave hard candies (sugar) alot and think my CFS could be yeast related. I'm desperate and going on a yeast free diet to see if I can weed out the culprit.
I started feeling reallly bad about 2 years after my daughter was born or 5 years ago. I did have PPD after her birth, but my problem when she was around 2 was related to exhaustion. The doc attributed my exhaustion to depression and not the other way around. Everytime I go to the doctors they want to put me on antidepressants and what I need is to not feel so tired that it seems I'm dying. Did I mention I get soo aggravated at well meaning family/friends who think if I'd just excercise more I'd feel better. Umm hello lol, I barely can grocery shop without feeling sickly afterwards (headache and weakness EVERYTIME). I also was diagnosed as a teen with IBS (the constipation variety) and there was a lesion on the colon then.
The first doc ran all kinds of tests. At that time my white blood cell count was high and I had a low grade fever. I have had a low grade fever for several years now of around 99.5-99.7. I tend to always feel chilly and wrap up when visiting family. They always laugh at me say I'm cold all the time, but I guess the low grade fevers can be attributed to that? She finally wanted to test for HIV which I told her I knew I didn't have, but let her test anyway and it was negative.
I can't even stand to drink alcohol because it makes me so tired. Even a sip, which my hubby just doesn't believe is possible. Beer is the worst, but I did find information that said that could be a sign of the yeast overgrowth.
I get VERY DOWN because I want to go more and do more with my children. Since I homeschool it makes me feel like a pretty bad mom since I can't get them out and about as much as the other parents do. I love homeschooling, but I feel a serious energy drain this year and am contemplating putting my oldest back into private school.
I'm just so sick of talking to people who don't seem to understand or who think exercise is the answer or treating my exhaustion with antidepressants that make me more tired lmbo. I'm about 6 lbs overweight at my height of 5ft 4 (146lbs), so I know it's not being overweight that's doing it.
I'm sorry to put my life story on here, but I just need prayer and others who don't mind reaching out to me.
I started feeling reallly bad about 2 years after my daughter was born or 5 years ago. I did have PPD after her birth, but my problem when she was around 2 was related to exhaustion. The doc attributed my exhaustion to depression and not the other way around. Everytime I go to the doctors they want to put me on antidepressants and what I need is to not feel so tired that it seems I'm dying. Did I mention I get soo aggravated at well meaning family/friends who think if I'd just excercise more I'd feel better. Umm hello lol, I barely can grocery shop without feeling sickly afterwards (headache and weakness EVERYTIME). I also was diagnosed as a teen with IBS (the constipation variety) and there was a lesion on the colon then.
The first doc ran all kinds of tests. At that time my white blood cell count was high and I had a low grade fever. I have had a low grade fever for several years now of around 99.5-99.7. I tend to always feel chilly and wrap up when visiting family. They always laugh at me say I'm cold all the time, but I guess the low grade fevers can be attributed to that? She finally wanted to test for HIV which I told her I knew I didn't have, but let her test anyway and it was negative.
I can't even stand to drink alcohol because it makes me so tired. Even a sip, which my hubby just doesn't believe is possible. Beer is the worst, but I did find information that said that could be a sign of the yeast overgrowth.
I get VERY DOWN because I want to go more and do more with my children. Since I homeschool it makes me feel like a pretty bad mom since I can't get them out and about as much as the other parents do. I love homeschooling, but I feel a serious energy drain this year and am contemplating putting my oldest back into private school.
I'm just so sick of talking to people who don't seem to understand or who think exercise is the answer or treating my exhaustion with antidepressants that make me more tired lmbo. I'm about 6 lbs overweight at my height of 5ft 4 (146lbs), so I know it's not being overweight that's doing it.
I'm sorry to put my life story on here, but I just need prayer and others who don't mind reaching out to me.
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
A.
I sure will pray for you ... I know how hard it is when no one believes you!!!
So after I finally got fed up with the excuses from my doctor saying he didn't know what was wrong with me other than depression and weight I went to a naturopath. I don't have a results to report yet because financially I can't afford the supplements yet but I am working up to it! So I wish I could to you more than I can relate to what you are going through. I wish the best of luck to you! Blessings!
~Jackie
First, find a good compounding pharmacy that sells the kind of probiotics kept in the refrigerator, they are OTC. They will help balance out the yeast, and then when you eat more healthfully it will actually get absorbed into you.
Also, look into your hormonal family history if you can and make sure you're not flirting with some kind of premature peri-menopause. I just heard yesterday that it can start at 35, and a visit to the meno boards will show you it can happen earlier too. There is a product called Brevail that might help a little, also OTC.
But first, since you suspect yeast, that needs to be dealt with or anything else you try will just pa$$ through you unabsorbed.
As to the people giving you 'support and advice' - here are some websites that may help you with the words to deal with them:
http://notdoneliving.net/foothold/openletter/index.html
http://www.juiceguy.com/Fibromyalgia-what-you-should-know-about-me.shtml
http://www.butyoudontlooksick.com/the_spoon_theory/
The last one is by a woman with lupus, but the symptoms are very similar.
Good luck.
i am 32 and i am the mother of 3 boys who are all on the autism spectrum. i homeschool my youngest son and honestly there are days i can't open my eyes i hurt so bad. and so those days are off days, and we either make them up by working over the weekend or we count them as a loss. i live in oklahoma where the homeschooling laws are nonexistant-the state does not have the right to come in and look at what i am doing. my son and i work over summer break and all of the holidays-it all evens out in the end, plus we do alot of work during the day. sometimes his assignments are all interactive computer games that i have found for him that are about a subject we are studying. also, having the kiddo's in the kitchen with you helping you measure out the sugar for the coolaid, or having them help with sorting the laundry is teaching very valuable lifeskills. we don't get out as much as i would like, but we do get out. i take that back he gets out with his daddy.
do you have any support? maybe someone would be willing to help you. there should be some sort of city wide sports that you can get the kiddo's into or something in the ymca. i can get into the mood that i beat myself over the head because i don't feel like i do enough with sammy, but when i step back and see how far he has come in just the 7 months that he has been homeschooled, i know that i have made the right descion. when sammy came home and i was able to assess where he truly was academically, i was shocked. he could barely read on a 1st grade national level, and he could barely write a simple sentence. he does have aspergers syndrome and they just refused to teach him in the only way he can learn-so he fell behind and wasn't able to catch back up. now we do brain integration therapies during school and his capabilities have just gone through the roof.
of course if you think putting your daughter back into private school would take a load of stress off of your back then maybe it is the best thing to do-stress makes us sick-not just stressed it can land us in the hospital. our systems cannot take it. but if you are wanting to keep her at home and you are just afraid that you aren't doing enough send me pm and i will help you figure out some things to help.
you are not a bad momma because you are sick. we don't choose this! who would? and for those people who think you need to exercise print out as much info on cfids/me as you can and look up every word in the sypmtoms and show them what post-exertion maliase is. that doesn't mean that you aren't doing enough. i think we all have those people in our lives that think we have found our ticket to soap operas and bonbons, but if they don't trust you enough to know that your house is a mess because you are sick then *&%*^ them! this is what i have decided to do because i have the same problem with my mom and my sis-they are just so tired of hearing that i am sick and why hasn't anything shown up in your blood work or many scans that prove you should feel this way, and it hurts me, and i am tired of being hurt by that. so i have printed everything i can up and used the most reputable of all medical websites so that i can sit down with them and show them that this is what i have-i have very little control over it, except to not push myself and run around like a manic when they are on thier way over. if my house being messy is that big of a deal to them then they have 2 choices:1) help me clean it up and 2)don't come over ever again. i refuse to make myself so sick that i can't walk down the hallway to the bathroom because i have had to clean up a weeks worth of life from every room in the house, because they dont' even honor that my bedroom should be off limits to them. i will educate them and then after that they have the choice and no matter what i am going to be ok.
i know this has been a long reply-i hope i helped some. keep your chin up and that frown upside down little missy!
In order to get a diagnosis you will have to find a specialist in your area for CFS - I have a nuerologist specialist. I would advise you not to go to just any doc if you want a diagnosis but to find one that practices everyday with CFS patients. Other docs arent capable of giving you a diagnosis.
There are many other illnesses that mimic CFS (Aids, thyriod, lupus, lymes, low iron, female hormones, sleep disorders, and so on) Only a reputable doc can perform blood work and tests like MRI scans to figure this out. Good luck honey and I hope I helped alittle. Plus hope u feel better soon.