Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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Myth Busting ...

deleted_user
deleted_user
Ok, all you Type A data driven types ....

http://www.aacfs.org/images/pdfs/myths.pdf
deleted_user
deleted_user
These are just some of the myths that are correctly disputed by reputable CFIDS experts. Klimas, Komaroff, Jason and Peterson. When you look at the Journal of Chronic Fatigue Syndrome, you see 100s of empirical cases of evidence that the disease is real. Is visible.

There's another disturbing fact. When you look at what it takes to get diagnosed w/ ME in the UK, you see a mother load more of empirical evidence. While the UK may be behind the times, as our UK friends who've gone through their tribunals have told us, the UK is still a world ahead of the USA. The UK doesn't call it bambi "CFS." The UK has many more tests that they use and accept as valid and reliable to diagnose you as someone w/ the real disease of what we g/ this illness the pathetic name of CFS.

The myths are disputed. The facts are there. We're just living in a time and a culture that is too scared to face the Reality. So we're not heard. We're silenced. Not believed. And it's killing us.
deleted_user
deleted_user
I find these myths very scary for us as a group of ppl that need medical help with a horrible illness. Who ever thought CFIDS wasn't real or in our heads needs to live one week in our lives to see how "in our heads" it really is, same for fibro.
deleted_user
deleted_user
Myth 6: Patients with CFS are either lazy or malingering. Yep, that's me, I am a malingerer. Lazy too. Now I can go on with life now that I know. Thanks world. LOL (Actually I'm nuts too, but don't tell anyone.)
deleted_user
deleted_user
Can I please have the psychosomatic kind now? I'm tired of this one.
deleted_user
deleted_user
I think so, Serena. You've had yours long enough. Who's kind enough to switch with her today. It IS Thanksgiving ... don't be piggy.

Wait. Wrong holiday -
deleted_user
deleted_user
Early Chrismakwanzakuh present?

Will trade - mine has high miles, but has been well-maintained. Plenty of use left in it!
deleted_user
deleted_user
It's nothing a little lobotomy can't cure. Oh I forgot the disease does that for us.
deleted_user
deleted_user
Plus, Serena's comes with good shoes.
deleted_user
deleted_user
The shoes don't come with the deal!!! Nyet! Nein! Nuh-uh! Those mine, mine, mine.

You can have the brain, though. I wasn't really using it anyway....
deleted_user
deleted_user
Oh yes you are ... liar, liar, pants on fire.

Ok. Fire. Can you IMAGINE having to "run for your life." Not me. I think I'd just go, "ok ... my time on this earth is officially over."
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