Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
"Chronic Fatigue Syndrome is still sometimes known as M.E. This is is now an outmoded label and the term Chronic Fatigue Syndrome is now encouraged within the medical profession.
We consider that this condition is actually based on a glandular disorder, which is created by the Hypothalamus overworking the Pituitary/Adrenal glands (together these make up the HPA axis), which in turn overwork the major body functions - gut, muscles, circulation and Immune sustem. We therefore call this condition 'HPA disorder'.
The reason that the Hypothalamus becomes overactive in the first place is that Bodymind (the protective, emotional intelligence working through the body) is sending symptoms to warn the person to take action to restore the balance between external demands and personal needs.
Bodymind also over-activates the HPA axis for a further reason - which is to put the whole organism on 'red alert' aganst the crisis. Thus the Immune system works harder at fighting infections - producing problems such as swollen glands, sore throat, feverishness and (in some cases) viral problems. The Digestive system works harder at defending against toxins in food - resulting in such symptoms as irritable bowel, stomach pain, nausea, blaoting and candida outbreaks. The muscles work harder in readiness for action and, because they burn up so much glucose, create fatigue. Overwork also causes muscle pain, weakness and post-exertional malaise. One particular muscle - the scalp muscle - causes tension headaches when it overworks. "
We consider that this condition is actually based on a glandular disorder, which is created by the Hypothalamus overworking the Pituitary/Adrenal glands (together these make up the HPA axis), which in turn overwork the major body functions - gut, muscles, circulation and Immune sustem. We therefore call this condition 'HPA disorder'.
The reason that the Hypothalamus becomes overactive in the first place is that Bodymind (the protective, emotional intelligence working through the body) is sending symptoms to warn the person to take action to restore the balance between external demands and personal needs.
Bodymind also over-activates the HPA axis for a further reason - which is to put the whole organism on 'red alert' aganst the crisis. Thus the Immune system works harder at fighting infections - producing problems such as swollen glands, sore throat, feverishness and (in some cases) viral problems. The Digestive system works harder at defending against toxins in food - resulting in such symptoms as irritable bowel, stomach pain, nausea, blaoting and candida outbreaks. The muscles work harder in readiness for action and, because they burn up so much glucose, create fatigue. Overwork also causes muscle pain, weakness and post-exertional malaise. One particular muscle - the scalp muscle - causes tension headaches when it overworks. "
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
It's interesting what you're saying about the cause of ME/CFS. I have bought the book about reverse therapy and am half way through reading it.
I believe that the term used to describe the illness differs depending on what country you live in. I appreciate that, in the UK, the medical profession prefer to use CFS. However, I understood that the Department of Health uses CFS/ME.
A problem those of us who have this dreadful illness face is other people accepting that this is an organic disorder and not a psychiological one. When we use the term CFS other people only seem to hear the word fatigue and don't understand how debilitating the vast range of symptoms are. Many sufferes of this illness, myself included would always choose to use the term ME.
Thankyou for your interesting posts, it's always good to hear of ways that may help give relief from the symptoms of this illness.
Reverse and Mickel Therapy, and the Lightening Process are very interesting new therapies.
The information I have is the opposite...that "chronic fatigue syndrome" is outdated terminology which has been replaced with the original designation for the illness...myalgic encephalomyelitis. This change was published last fall in the Journal of Internal Medicine.
Much has changed since then
Sadly, some of the posters who contributed to this discussion have passed.
Sorry to hear about the people we lost. I didn't read all the posts, or I would have seen the post by my dear sweet friend who is no longer with us. Her kind and playful spirit will not be forgotten by those of us who were fortunate enough to be her friend.