I do not know what to do anymore. Last week I went to the emergency room I could not walk and was running fever off an on of 103. Every time I had fever I could not walk. Fever went away and I could walk. I was in the hospital with them running tests on me from Monday thru Sat. Fever finally went away for good on Thurs. night. They found something abnormal in my spinal fluid which looked like MS, but my brain MRI showed up normal. So did the MRI of my total back. Urine tests showed and so did blood tests that my body was releasing way too much phosphate, which is what your body uses for energy. Which is why they think I am so tired all the time and that my muscles in my legs and arms give out on me upon exertion. Now I am back to work, tired all the time, walk like I am drunk and needless to say I tried to go shopping with my mother, who by the way is 69 and has had 6 or 7 back surgeries and gets around better than me at 43. I tell you my life right now totally sucks. Anyway back to the shopping trip. I made it halfway thru the first store, we only went to three and I finally gave up. Halfway thru the first store I was starting to feel extremely tired, my legs were not working too good and my back was killing me. We sat down in a little coffee shop for about 10 min. and I was still hurting, but walking a little better. Off to the second store. Thank god for shopping carts because the whole time that is what kept me from falling down. I barely made it across the parking lot to my truck after the third and final store. My mom was holding onto my arm and I was afraid I would pull her down with me. OK so get this I call one of the docs that was looking after me in the hospital to see if they got results from some of the tests that were "sent away" and all he told me is that they were all normal and if what I was going thru was "bothering" me I could go to the ER. Big laugh as they do not know what else to do for me. So now where do I go????? Someone in my building at work suggests that they do a CT Myleogram on my middle back, which is where the problem of her husband who had a lot of my symptoms was finally found, after tons of MRIs and docs. So I go back to the doctor "Internal Medicine" on the 14th of this month and I will ask about this, but I am not very hopeful at this point. I think I will just have to learn to live with this, even though I am getting worse as the months and years go by, because when this started 3 years ago it was not this bad. I mean even since the fever and being stuck in the hospital I feel different. I mean I was not this off balance nor this tired before last week. I don't know what to do or where to turn.
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