Wow ... THIS is awesome! Let us know everything when you get back! Here's hoping the trip itself isn't too exhausting!!!

HOPE YOU FIND SOME ANSWERS!! REST WHEN AND WHERE YOU CAN. LET US KNOW WHAT YOU FIND OUT.

You're doing the right thing. You will be glad you did it and you can rest when you get home. Keep us posted.

My problem with CFIDS began with black mold. Please, Please, let us know what you have found out.

As you can see, every single one of use wants to know what you find out. Me too. Would you be good enough to post it on the discussion board so we can all see it? You could call it "mold doctor report" or something like that. We'll all be waiting. Try not to stress too much, seems like quite a trip. You can do it! We will be waiting for your post.
Sincerely xx oooo

Good luck.
How does one find a doctor who specializes in mold? Do they have a special term for this type of doctor?

Thanks for all the support.
I will be sure to fill everyone in when I return.
This particular type of doctor was a referal given to me by someone else who has been affected by mold.
I sure hope its worth the trip!

Hugs to youu all!

Rosanne~

Hi Rosanne how did your appointment go?

Yeah .... Rosanne, how *did* that appointment go? How was the trip in and out of Boston?

I've always thought there was a relation to mold and CFIDS, let us know how it goes, take care,XOXOXO Cindi

You must be pooped fr. the appt. plus the trip. Overwhelming just to think about it. Hope you make it to here as soon as you feel up to it.

Well everyone it was quite an adventure and too much for one day. I ended up missing my train back so I opted to stay at a Holiday Inn for the night, I was so dead tired.
The train ride was quite pretty I might add but the cab driver from the train to the doctors office was horrid, he couldnt speak nor understand english well and he couldnt find the address.Grrr! I ended up being was late for the appointment.
Well the doctor and his staff were wonderful. He looked at some previous blood work that I brought with me and said my mold exposure is off the charts like nothing he has ever seen. My immune system is down to nothing also. Mind you this blood work is back from 2 years ago and the doctor that ordered these tests prescribed something to help pull the mold from my body called CSM. I have since been on the "no amylose diet" so hopefully the new blood work he did Monday will show improvement. I told him my main concerns were the face and head pain and the fatigue. He is questioning a fungus growing in my face and head. I have been wondering this as well. He said that he most definately can help me. He also asked me if I could come back one more time. He was sensitive about the fact that he knew how hard this must be for me to be traveling but he needs me to do it one more time after the blood work comes in. He will then be doing some type of allergy testing to see if I`am allergic to molds. He said if I`am, he can give me shots for it and hook me up with someone in the Boston area who can continue with them. I`am just taking it one day at a time. Right now I need to get a ct scan done and get that to him. His nurse and one of the secretaries were nice enough to drive me to the hotel since we closed the office. I have hope that he can help me. I dont look forward to doing this again too soon but, anxious to do anything that might help.
Thanks for asking about me everyone.
You guys are the best!

Hugs,
Rosanne

An exhausting but promising trip with optimistic possibilities. Thanks for the information. I hope things improve you. Keep us posted. Rest up!

Sounds very promising Rosanne. This is good news, he actually found something he can work with. PHEW! Thanks for posting your news. Hopefully things will move forward for you now. Blessings, Darla xxxxx ooo