I volunteer at a big cat sanctuary and told the operations manager about my CFS when I started there. He seemed really cool about it then. But lately he's been asking my friends about my illness--"is it all in her head? does she really have to sleep all the time? does she work and how much?" etc. etc. I am so sick of it! It's the old "I don't believe her because she looks fine--maybe she's just faking so she doesn't have to work hard and isn't committed to us." How do you guys deal with this?? After 8 years it still comes up and I hate it!
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Hi Everyone- Hope you are hanging in there. This disease can be so terrible :( I just wanted to post some updates on the current research for ME/CFS. For those that missed it, the 3rd symposium held by The Open Medicine Foundation was on Saturday. I tried to watch online and am still going back to watch what I missed. Videos are availabe on their facebook page and soon to be uploaded to...
I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...