Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Hello,
A research center that specializes in FM/CFS/Gulf War syndrome put together this list if diagnostic tests that they recommend for all FM/CFS patients (the original document is here:
http://www.immed.org/Fatigue%20Illness/reports/Recommendations%20for%20Diagnostic%20Testing.rtf):
1. MycoplasmaTest Panel (CPT: 87798x3, 87581)Mycoplasma species panel of 4 pathogenic mycoplasmas (M. fermentans, M. penumoniae, M. hominis, M. penetrans) by PCR. Alternatively, a Mycoplasma general (all species) test by Qualitative PCR can be substituted. Justification: Almost 60% of CFS/FMS and 50% of Rheumatoid Arthritis (RA) and other autoimmune patients have one or more intracellular, systemic mycoplasmal infections similar to those found in a variety of chronic illnesses [Nicolson et al. Mycoplasmal infections in chronic illnesses: Fibromyalgia and Chronic Fatigue Syndromes, Gulf War Illness, HIV-AIDS and Rheumatoid Arthritis. Medical Sentinel 1999; 5:172-176]. Ultrasensitive and ultraspecific mycoplasma tests can only be done by a small number of labs, most university or government labs that have been trained by us under a U.S. government contract. Specimen Requirements: one (1) 5 cc Plastic Tube (ACD solution A). The blood is collected, immediately mixed and placed on ice or immediately stored in a refrigerator until it is shipped in a container containing some wet ice in a plastic bag by overnight air courier to arrive within 24 hours.
2. Chlamydia pneumoniae Test (CPT: 87486)Chlamydia pneumoniae by Qualitative PCR. Justification: Many CFS, FMS, MS, RA and other patients have this systemic infection along with viral infection(s). We were among the few labs that developed the molecular tests that are now done for this type of infection. The other labs that use these procedures are university labs. Requirements: one (1) 5 cc Plastic Tube (ACD solution A). The blood is collected, immediately mixed and placed on ice or immediately stored in a refrigerator until it is shipped in a container containing some wet ice in a plastic bag by overnight air courier to arrive within 24 hours.
3. Lyme Borrelia Test (CPT: 87476)Borrelia burgdorferi (Lyme Disease) by PCR. Justification: Many CFS, FMS and RA patients have this systemic infection (diagnosed as Lyme Disease) along with other infection(s). Requirements: one (1) 5 cc Lavender top Plastic Tube (EDTA). Specimen Requirements: one (1) 5 cc Plastic Tube (ACD solution A). The blood is collected, immediately mixed and placed on ice or immediately stored in a refrigerator until it is shipped in a container containing some wet ice in a plastic bag by overnight air courier to arrive within 24 hours.
5. HHV-6 Test (CPT: 87532)Human herpes virus 6 (HHV-6) test by Real-Time PCR. Justification: Many CFS and some FMS patients have this systemic viral infection, and it should be tested for in any autoimmune illness. Specimen Requirements: one (1) 5 cc Plastic Tube (ACD solution A). The blood is collected, immediately mixed and placed on ice or immediately stored in a refrigerator until it is shipped in a container containing some wet ice in a plastic bag by overnight air courier to arrive within 24 hours.
6. CMV Test 07034 (CPT: 87496)Cytomegalovirus (CMV) test by Qualitative PCR. Justification: Many CFS and FMS patients have this systemic viral infection, and it should be tested for in any autoimmune illness. Specimen Requirements: one (1) 5 cc Plastic Tube (ACD solution A). The blood is collected, immediately mixed and placed on ice or immediately stored in a refrigerator until it is shipped in a container containing some wet ice in a plastic bag by overnight air courier to arrive within 24 hours.
A research center that specializes in FM/CFS/Gulf War syndrome put together this list if diagnostic tests that they recommend for all FM/CFS patients (the original document is here:
http://www.immed.org/Fatigue%20Illness/reports/Recommendations%20for%20Diagnostic%20Testing.rtf):
1. MycoplasmaTest Panel (CPT: 87798x3, 87581)Mycoplasma species panel of 4 pathogenic mycoplasmas (M. fermentans, M. penumoniae, M. hominis, M. penetrans) by PCR. Alternatively, a Mycoplasma general (all species) test by Qualitative PCR can be substituted. Justification: Almost 60% of CFS/FMS and 50% of Rheumatoid Arthritis (RA) and other autoimmune patients have one or more intracellular, systemic mycoplasmal infections similar to those found in a variety of chronic illnesses [Nicolson et al. Mycoplasmal infections in chronic illnesses: Fibromyalgia and Chronic Fatigue Syndromes, Gulf War Illness, HIV-AIDS and Rheumatoid Arthritis. Medical Sentinel 1999; 5:172-176]. Ultrasensitive and ultraspecific mycoplasma tests can only be done by a small number of labs, most university or government labs that have been trained by us under a U.S. government contract. Specimen Requirements: one (1) 5 cc Plastic Tube (ACD solution A). The blood is collected, immediately mixed and placed on ice or immediately stored in a refrigerator until it is shipped in a container containing some wet ice in a plastic bag by overnight air courier to arrive within 24 hours.
2. Chlamydia pneumoniae Test (CPT: 87486)Chlamydia pneumoniae by Qualitative PCR. Justification: Many CFS, FMS, MS, RA and other patients have this systemic infection along with viral infection(s). We were among the few labs that developed the molecular tests that are now done for this type of infection. The other labs that use these procedures are university labs. Requirements: one (1) 5 cc Plastic Tube (ACD solution A). The blood is collected, immediately mixed and placed on ice or immediately stored in a refrigerator until it is shipped in a container containing some wet ice in a plastic bag by overnight air courier to arrive within 24 hours.
3. Lyme Borrelia Test (CPT: 87476)Borrelia burgdorferi (Lyme Disease) by PCR. Justification: Many CFS, FMS and RA patients have this systemic infection (diagnosed as Lyme Disease) along with other infection(s). Requirements: one (1) 5 cc Lavender top Plastic Tube (EDTA). Specimen Requirements: one (1) 5 cc Plastic Tube (ACD solution A). The blood is collected, immediately mixed and placed on ice or immediately stored in a refrigerator until it is shipped in a container containing some wet ice in a plastic bag by overnight air courier to arrive within 24 hours.
5. HHV-6 Test (CPT: 87532)Human herpes virus 6 (HHV-6) test by Real-Time PCR. Justification: Many CFS and some FMS patients have this systemic viral infection, and it should be tested for in any autoimmune illness. Specimen Requirements: one (1) 5 cc Plastic Tube (ACD solution A). The blood is collected, immediately mixed and placed on ice or immediately stored in a refrigerator until it is shipped in a container containing some wet ice in a plastic bag by overnight air courier to arrive within 24 hours.
6. CMV Test 07034 (CPT: 87496)Cytomegalovirus (CMV) test by Qualitative PCR. Justification: Many CFS and FMS patients have this systemic viral infection, and it should be tested for in any autoimmune illness. Specimen Requirements: one (1) 5 cc Plastic Tube (ACD solution A). The blood is collected, immediately mixed and placed on ice or immediately stored in a refrigerator until it is shipped in a container containing some wet ice in a plastic bag by overnight air courier to arrive within 24 hours.
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
Just been reading your reply to angelcrum. Please don't listen to your doctor. I think the majority of us have been told the same thing by our doctors. They have been drilled into telling ME/CFS sufferers this by government.
Would doctors tell patients with MS or Parkinsons for example that there disease was due to depression, NO, or course not. These people become depressed due to the disease not the other way around. There would be an international outcry!!
WHY are they allowed to get away with it, I hear you ask. Well, of course, it all boils down to what makes the world go around 'MONEY'. We ME/CFS sufferers would cost government too much money. There are so many of us. More than people with MS, Parkinsons, and cancer put together!
Please read some facts that I have posted on the discussion list, pages 7, 12, & 13. It will open your eyes.
Dizzi X