I was Dx w/ MCTD this past April. It is an auto immune disease which is composed of syptoms of many disease n 1. Approximately 20 people out of 1 milllion will b inflicted w/ such a disease. 1 thing is CFS. I went from sleeping about 4hrs a nite w/ no problem 2 sleeping as much as possible & still feeling exhausted! It truly suxs! My Rheumy started me on Nuvigil. It's a similiar yet newer drug 2 Provigil. I was aware of the chance, all b it low, that it could cause a serious skin disorder called SJS(Steven Johnson Syndrome) where 1's skn appears burnt & can slough off. Needless 2 say while taking the Nuvigil it was as though I was given part of my life back. It was truly wonderful. Although about 2wks after starting the med I started w/ pain n my mouth, a rash on my arms/legs, red face w/swelling & the skin was peeling off my abd. The itching was unbearable. I had 2 stop the med, get steroid inj along w/ the tabs. It was a sad parting. I feel like I'm back 2 square 1. Anyone else have any great med experience 2 help w/ CFS? All comments r greatly appreciated. I know that no matter how much I may wish that there is not going 2 b 1 miracle fix it pll. Thanks 4 all your assistance.
Posts You May Be Interested In
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...