Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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Do I have CFS?

deleted_user
deleted_user
My health has not been well for some time now. Starting about 8 years ago. It started with strange allergies to foods and medicines, insomnia and extreme fatique. I made it through grad school, got married and started a family. Then my symptoms got worse. 2 years ago I was diagnosed with Rheumatoid Arthritis. I am on plaquinel now and that seems to help with my arthritis, however my other symptoms are still there. I have problems sleeping, severe allergies to caffeine and meds, extreme fatique and muscle weakness and recently muscle twitching as well. I have been through every test possible in the last 2 years and to 1/2 a dozen doctors. My chiropractor recently mentioned I may have CFS on top of the RA. Whenever my blood is taken my epstein barr is elevated. I know it is always dormant in your blood, but I have also read that it can be related to CFS. I am taking daily vitamins and trying to exsercise. I haven't worked in 15 months and was hoping to go back to teaching, but I am very worried, as I never know how my health will be from day to day. Does this sound like CFS? Any suggestions?
deleted_user
deleted_user
My advise would be to make an appointment with an infectious disease specialist. Log your symptoms and take copies of previous blood work. Also, it may be helpful to go to www.cfids.com and print out the information they have there and compare symptoms. You need an expert/doctor's opinion. Only they can diagnois and treat CFS. Good Luck, Laura
deleted_user
deleted_user
i have been told a neurologist is the kind of dr to see for ebv...its hard to find someone who has experience with treating it- good luck
deleted_user
deleted_user
Hiya,It does sound like you do have cfs/me,but only a dr can diagnose this.I also never know how i'm going to feel when i wake up,very frustrating.Try to keep yor chin up. Love ladybarbara xx
deleted_user
deleted_user
I have not been well for almost 7 years on and off, But in the past 3 years i have felt pretty bad and suffering from a lot of muscle pain in the upper back and the knees. And in the lower back to
i also had very bad deression which i was on anti depressants for about 1 years before i slowly came off them.
In March i had a MRI scan which showed that i have a wear and tear in the back?The tiredness i have comes and go really. I am seeing a specalist sometime soon if i can get my appt brought forward.
Mum and my GP both thinks that it might be CFS that are causing my symptoms but when i told Mum about the ME/CFS she said it was the nearest thing i have?

Here are some of the symptoms i have?
Tiredness
Muscle pains
Feels the cold easliy on skin
Head and face hurts
Eyes can feel achey
Tinnitus
Body feel tight and tender
I have been diagnose at all. Any ideas?
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