Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
Hi All,
I just need to vent. Three months ago I started using Klonopin with Ambien and BINGO I was able to get seven hours of sleep pretty regularly. Went back to my teaching job in September and grew more stressed, more exhausted. Asked doctor what to do since I was back to my sleep ending at 3:30am. She gave me the OK to add .25 mg on top of the 1.0 I was taking when I feel I need more help sleeping. Well, the past month has been so exhausting I took 1.25 every night and now, because this is a controlled substance in New York I cannot get a refill for 8 days. I called my doctor's office a week ago to let them know I was running out. Why is the pharmacist the one explaining this to me and why am I making seven phone calls (so far) today to just try and get the one medication that has finally enabled me to sleep. I feel like a little kid begging for one more cookie.
I know none of this is personal but it is so frustrating to have to work with the bureaucracy of the pharmacy and my treatment center time after time to get things to work only to keep discovering more rules that get in the way. If even a single one of them had had CFS they'd look out for these snafus and teach me ahead of time because they'd know how one little thing like this can be so important.
It could be worse but I needed to vent. How many Valerian tablets equal 1mg of klonopin?
I just need to vent. Three months ago I started using Klonopin with Ambien and BINGO I was able to get seven hours of sleep pretty regularly. Went back to my teaching job in September and grew more stressed, more exhausted. Asked doctor what to do since I was back to my sleep ending at 3:30am. She gave me the OK to add .25 mg on top of the 1.0 I was taking when I feel I need more help sleeping. Well, the past month has been so exhausting I took 1.25 every night and now, because this is a controlled substance in New York I cannot get a refill for 8 days. I called my doctor's office a week ago to let them know I was running out. Why is the pharmacist the one explaining this to me and why am I making seven phone calls (so far) today to just try and get the one medication that has finally enabled me to sleep. I feel like a little kid begging for one more cookie.
I know none of this is personal but it is so frustrating to have to work with the bureaucracy of the pharmacy and my treatment center time after time to get things to work only to keep discovering more rules that get in the way. If even a single one of them had had CFS they'd look out for these snafus and teach me ahead of time because they'd know how one little thing like this can be so important.
It could be worse but I needed to vent. How many Valerian tablets equal 1mg of klonopin?
-
Hi Everyone- Hope you are hanging in there. This disease can be so terrible :( I just wanted to post some updates on the current research for ME/CFS. For those that missed it, the 3rd symposium held by The Open Medicine Foundation was on Saturday. I tried to watch online and am still going back to watch what I missed. Videos are availabe on their facebook page and soon to be uploaded to...
-
I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
LOL.
I totally hear you Ambien used to work for me but since mid summer I've been taking 2 mg. of ProSom (let's face it .. bennies work!) I literally burst into tears last week when my psychiatrist told me it was being taken off the market. I'm trying to wean myself off NOW so I don't have to do it abruptly. Took 50% less last night and 2 supplements that come HIGHLY recommended. Hardly slept a wink and whenever I "woke up" in the night my hands were completely numb.
Something's not right here. We're not important enough to get a CFIDS drug but we can't get the drugs that DO help us???? Hmmmmm. Another gov't. rant is welling up inside me.
I think I'll go knit now.
It's also one of consequences of having an illness that the gov't. doesn't get.
So sorry.
What's the saying, government for the people, by the people, . . .?
When has it ever been "for the people"?
So many laws hurt as many people as they help.
Thanks for letting me ramble.
I actually one considered taking apart the plumbing underneath my sink to see if I could "find" that blasted pill. Me. I am so totally and COMPLETELY not "handy." What was I? Tired and beside myself.
Have you spoke to your doctor about this?
I was wondering if you could alternate between meds. Say Klonepin one night and another anti anxiety (I cant remember the drugs name right now ) the next night. That way way you would have two scripts enough to carry you through the month.
Just a thought..
I do hope you come up with something.
Have you spoke to your doctor about this?
I was wondering if you could alternate between meds. Say Klonepin one night and another anti anxiety (I cant remember the drugs name right now ) the next night. That way way you would have two scripts enough to carry you through the month.
Just a thought..
I do hope you come up with something.