
Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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Anyone else out there suffering with CFS and having relationship issues as a result ?
I have lots of very good friends who have supported me through the worst of having CFS. I am getting slowly better with relapses and patience but the one person who seems to have lost patience with me is my husband who cannot believe that my relapses are real. He is now talking about separation possibly divorce as I am no longer the woman he maried. I agre I am not nor do I think I will be this has been life changing...
Ironically this is making my current relapse worse.
Anyone else in this siuation and if so what did you do ? Did you successfully manage to explain to your other half about CFS and if so what materials and how did you do it? AS I said I do have marvellous friends who support me so I am lucky in that respect. I thought the topic might be of interest to other CFS suffers as well.
hugs to all of you out there feeling bad today. Behind the clouds the sun is still shining.
I have lots of very good friends who have supported me through the worst of having CFS. I am getting slowly better with relapses and patience but the one person who seems to have lost patience with me is my husband who cannot believe that my relapses are real. He is now talking about separation possibly divorce as I am no longer the woman he maried. I agre I am not nor do I think I will be this has been life changing...
Ironically this is making my current relapse worse.
Anyone else in this siuation and if so what did you do ? Did you successfully manage to explain to your other half about CFS and if so what materials and how did you do it? AS I said I do have marvellous friends who support me so I am lucky in that respect. I thought the topic might be of interest to other CFS suffers as well.
hugs to all of you out there feeling bad today. Behind the clouds the sun is still shining.
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There really is a silver lining to every cloud.
Three months after I got married, my husband was diagnosed with lung cancer. I thought I would die at the thought of losing him. Never for one minute did I think of leaving him. He had two surgeries, I ran around like an idiot taking care of him and that's how we started our marriage. Now, six years later, he is healed up, thank God, and cancer free, thank God, and I have taken ill with CFS. Soooo now it's his turn to take care of me.
I must say that neither one of us has ever mentioned that the other is not the same person we married. I am bed-ridden and not a lot of fun. But when he was bed-ridden for nearly three years, I never left his side.
Marriage is 100/100, not 50/50. Remind your husband of that.
You are a gift that God gave to him. He must love you and respect you in sickness and in health.
You are right, the sun is still shining behind the clouds of illness. Pray that he can see through and love you as he should. You are his wife, for life, and you deserve at least his love and understanding in this difficult time.
Praying for understanding for your husband.
Sincerely, DarlaC
I haven't experience the same problem but I had lots of clients who are in similar situation. This is very common, so please take him to a doctor with you and educate him on this matter. look at www.reverse-therapy.com
Write to me if you need more help. I can write any more, need to go of the computer, but good luck
We all are in a very difficult position. Our illness is an illness of being alone and no sympathy at all. It is not only your husband who does not understand. I know it is difficult but try to understand him. Put yourself in his shoes. It is difficult for him as well as it is for us to understand this illness. Be patient with him. I know you are the one who needs the support, but it is very hard for him to understand.
I have had it for 7 years, and lost all my friends. Nobody believe it. I even heard that my illness was a lie. Had to make new friends. Had a partner who bounced all the time with my illness, and at the end we parted. My mistake was not understanding him. Wanting him to understand me and my illness. I am not saying this is your case, but try to love him more and to understand that for him is almost impossible to understand this illness. I am not saying you are selfish, I know we should be understood but almost most of the people do not understand and it is very confusing for them. Try to love him evem more and try to understand him. It is difficult but try. I am living alone, managing well, but it is much better having someone coming back home and eating together. I failed to understand that he could not understand my illness, and I should have understood that it is almost impossible for them to understand it.
He is much more considerate now and seems to be more accepting ( it is hard for them to miss the sparkle that we had when well)
Also remember MEN are FIXERS. They are extremely upset when they care for you but can't fix our problems (illness). A lot of his frustration maybe at himself because he thinks that it has failed you in some way.
Hope this helps!
Excellent post. Thanks for sharing. Hugs Ellen