Chronic Fatigue Syndrome Support Group

Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...

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CFIDS vs. Cancer

deleted_user
deleted_user
Any and all illnesses are horrible. When I was a kid, my relatives always used to say the most important thing is health. Feeling completely invincible as a child, it was only in my later years that I knew fully what they meant. Sometimes ppl on here imagine that it would be easier to have cancer than CFIDS. One member who had cancer, said it is easier to have cancer than CFIDS because the government believes cancer. I understand that and was just wondering what you thought.
deleted_user
deleted_user
CANCER! It's both recognized and treatable!!! I just got back from my doctor's office. I can't type it all out again but it's in my today's journal entry. Even my doctor told me I'd better off with cancer or lupus.
deleted_user
deleted_user
I've had the same thought... And who knows, my next mammo, it might be true...
DarlaC
DarlaC
When my doctor told me I had CFIDS, I just looked at him. After some further discussion, I said, "well I'm thankful it isn't some kind of cancer" He said, "No, cancer I can help you with. There are cures. You're just going to have to accept this and get into therapy to deal with the upcoming depression that comes with chronic illness. Sorry." WHOA!
deleted_user
deleted_user
I have heard of a doctors diagnosis of me/cfs/cfids.... he said "You have ME/CFS. The good news is, it wont kill you...... the bad news is, it wont kill you." Pretty brutal, but at times I have wished I was dead. Not now though! Yes at least cancer is recognised, supported and often treatable.
deleted_user
deleted_user
I was diagnosed with a Stage 3 endometrial cancer in early 2006. Because it was a late stage growth, I had to undergo 4 pelvic surgeries (including a full hysterectomy) and 16 rounds of radiation.
The love and support I received from friends and family was amazing.

I was sick enough from CFIDS that I did not even notice the pains associated with the cancer. I just thought it was part of the disease and so did my (then) Dr.
I felt better while I had cancer than I did afterward becuase the treatments were so traumatic to me physically.

It was just as amazing to see how the support and love evaporated when I did not "get well".

Cancer does not scare me. Living for years with CFIDS is what scares me. It is slowly draining me financially, emotionallly and mentally.

Thank God to this website that I can stay emotionally fit by redaing and writing with fellow sufferers.
deleted_user
deleted_user
At the onset of this disease I was terrified of cancer, absolutely terrified, especially when I found out I had an 82% chance of getting breast cancer and a 32% chance of getting ovarian cancer. As time went on and I became sicker and sicker I began to think if I get cancer perhaps I wont go for treatment. Ill just die. That way I wont be a burden on my family anymore. I was no longer terrified of cancer I was terrified of having to live life as an invalid with no brain, no energy, lots of pain and no desire to go on. I am not a depressed person either I just dont want to live like this. Suicide is not an option for me but living like this is like dead living.

I started a new treatment and Im feeling better. Without the help of this support group I would be sick and have no where to turn. I had been to twenty doctors and none of them knew what was wrong. I could have easily lived the rest of my life in this hell. I am extremely grateful to have a friend who helped and a doctor who knew biotoxin disease.
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