Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I finally have the energy to post this.
3 years ago I went on Elavil, a tricyclic. I had to because I had done a homeopathic remedy that made me go nuts. It lasted for weeks and got worse. No matter what they tried to make me "right," it didn't work. So, I was put on elavil. I thought it was the answer to my prayers. It was the beginning of a nightmare.
I started noticing right away, that I was manic. I had so much energy, unlike my normal CFS self. I was freaked, but liked it because I was getting things done. A year and a half later I was in full blown MANIA.
I was then diagnosed as bipolar. Now, I have nothing against being bipolar, but I had not ever been like this until the ELAVIL. I had been off antidepessants for over 10 yrs. Never a need.
I was than put on lithium and became deathly sick. Then I was put on Zyprexa a neurotransmitter inhibitor along with Lamictal. It shifts the way your serotonin and dopamine work. I became lifeless and slept like a zombie. I became suicidal.
After a full 7 months of being on these horrible brain paralyzing medications...I went off of them cold turkey. Then I went nuts and started in full blown withdrawl. I couldn't sleep, I was having panic attacks, vomitting, plus I had just been poisoned by my floors being polyurethaned. NOMEMORY took me in...you know who she is right? She took care of me. I have known her for 17 years. I lived with her for a month.
I was a mess. I was anxious, nauseous, went down to a stick figure, hair fell out, I could not sleep. I had no perception of where I was. I could not be alone. I couldn't figure out distance. Everything was distorted. I HAD NEVER FELT LIKE THIS.
Why am I telling you this?...no not to scare you. If your meds work...great. I am telling you because medication can sometimes make a problem worse or you have a problem that you never had.
It's exactly a year since I went off of these meds. I am still not right. I still have anxiety. I feel present and like I am here and I can laugh and I now weigh 112 pds...YAY!!!
This year has been hell for me. I hope no one on here ever goes through that. Do not let anyone put you on mind altering drugs. They do just that..alter the mind. Sometimes for a lot longer than just when you take them.
The brain does not just bounce back. IT doesn't know what to do.
Thanks for listening. I needed to get that out.
3 years ago I went on Elavil, a tricyclic. I had to because I had done a homeopathic remedy that made me go nuts. It lasted for weeks and got worse. No matter what they tried to make me "right," it didn't work. So, I was put on elavil. I thought it was the answer to my prayers. It was the beginning of a nightmare.
I started noticing right away, that I was manic. I had so much energy, unlike my normal CFS self. I was freaked, but liked it because I was getting things done. A year and a half later I was in full blown MANIA.
I was then diagnosed as bipolar. Now, I have nothing against being bipolar, but I had not ever been like this until the ELAVIL. I had been off antidepessants for over 10 yrs. Never a need.
I was than put on lithium and became deathly sick. Then I was put on Zyprexa a neurotransmitter inhibitor along with Lamictal. It shifts the way your serotonin and dopamine work. I became lifeless and slept like a zombie. I became suicidal.
After a full 7 months of being on these horrible brain paralyzing medications...I went off of them cold turkey. Then I went nuts and started in full blown withdrawl. I couldn't sleep, I was having panic attacks, vomitting, plus I had just been poisoned by my floors being polyurethaned. NOMEMORY took me in...you know who she is right? She took care of me. I have known her for 17 years. I lived with her for a month.
I was a mess. I was anxious, nauseous, went down to a stick figure, hair fell out, I could not sleep. I had no perception of where I was. I could not be alone. I couldn't figure out distance. Everything was distorted. I HAD NEVER FELT LIKE THIS.
Why am I telling you this?...no not to scare you. If your meds work...great. I am telling you because medication can sometimes make a problem worse or you have a problem that you never had.
It's exactly a year since I went off of these meds. I am still not right. I still have anxiety. I feel present and like I am here and I can laugh and I now weigh 112 pds...YAY!!!
This year has been hell for me. I hope no one on here ever goes through that. Do not let anyone put you on mind altering drugs. They do just that..alter the mind. Sometimes for a lot longer than just when you take them.
The brain does not just bounce back. IT doesn't know what to do.
Thanks for listening. I needed to get that out.
-
theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
-
I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
MANY hugs!!!!!
Love you!
Can't be printed here.
I know they work for some people but, since my primary problem was rheumatic, the shrink misdiagnosed me and didn't believe in myofascial or repetitive motion injuries, everything was 'all in my head'...
Wish I'd found my rheumy before the shrink...
My cognitive/memory ever since Prozac has NEVER been the same. And it triggered a weight gain I've not been able to stop.
While I did later get to the bottom of emotional issues I did have, a much better therapist helped me, and no meds needed.
I'm not against meds, if that's what the problem REALLY IS. I just feel that not enough time is taken to really diagnose properly, and doctors in different areas of health don't interact enough with each other to benefit their patients.
Right now I am taking SamE and Deplin. SamE is a natural product, and Deplin helps the intake of seritonin without having any in it, it's a refined folate that helps absorbtion.
Sam
THESE TWO NATURAL DEODORIZERS ALSO ABSORB ODORS BETTER THAN ANY STORE BOUGHT JUNK ESP. THE VINEGAR AS IT WORKS BEST ON STRONG VAPOURS SUCH AS THE POST AND THE OIL-BASED PAINTS, ETC.!!!!!!!!!!!!!
After finding out about the clip in my breast and telling my former PCP what was wrong she kept telling me it was in my head and that their was nothing wrong with me. I agree to try Lexapro to shut her up and I took one pill and almost died. Now I realize that I was almost in adrenal crisis and had it been any worse I would have died. My husband had to take me home from the restaurant and I collapsed for two to three days. It was miserable.