I see a bunch of new people since I last signed in, asking questions (yay for seeking support!)
Unless you are lucky, it will be difficult to find a good doctor who accepts you, sadly. But we are here for you.
My tale of woe is 22 years old at this point. To get here was a rocky trip. Many doctors didn’t understand what I was dealing with. I even had the tough-love doctor who tried to cure my psychologicial troubles by telling me to get up and stop moping. But, of course, the underlying problem was not psychological. Some times I wouldn’t want to continue being a burden on my family. But, my family, thankfully, were vehement in letting me know I was no burden, despite my being incapable of most simple daily things. Finally, I stopped listening to doctors and just accepted I am impaired. I fought this notion forever. The idea was anathema. But, there’s what one wants and there’s what is. So, I soldiered on. It was then, in my peace, that a doctor took note that despite my mood change for the better I still had no energy. And he believed, and is now a huge supporter.
But, that’s besides the point. I had accepted that I could not do what I wanted most, and I was finally found some peace within.
It is not perfect. I still have plenty of bad days, but I can feel those and remind myself of what I do have, and return to being ok.
The latest updates in the CFS research by Dr. Ron Davis:https://www.youtube.com/watch?v=WmI5Ri0V51U&t=1993s
I have had 3 different people suggest trying sativa dominant strains of Cannabis Oil to help with the fatigue and sleep components of ME/CFS. Has anyone tried it? If so, any luck? Favorite type and where to buy it? Many thanks!