Chronic Fatigue Syndrome Support Group
Chronic Fatigue Syndrome (ME/CFS) describes a sense of exhaustion and post-exertion malaise, even when you have gotten enough rest and sleep. The disease is characterized by six months of incapacitating fatigue experienced as profound exhaustion and extremely poor stamina, and problems with concentration and short-term memory. The cause is unknown, but it is a...
I am currently in a dilemma regarding what I should do about working. Last night I was going to time myself and try to do 15 minutes of much needed sorting of papers and etc. Then I was going to rest for 30 minutes.
Needless to say life is narrowed down to very few people who come around anymore. And I believe the ones that do are sincere in thier efforts to see me through this. However, last night I was told that I had no business doing anything else if I couldn't get up and go to work because I was too tired. Am I supposed to give up on all other activities???
Now I am afraid for this person to see me doing anything other than laying around.
Is it not true that I can rest all weekend and possibly still not be able to get up to go to work?
Should I not take advantage of the times I do feel like doing something be it sorting papers, taking a walk, or whatever relaxes me?
Laying around all the time gets very old when I actually have a little energy. Can I conserve it?
Thanks for your advice! I am so lost !
Needless to say life is narrowed down to very few people who come around anymore. And I believe the ones that do are sincere in thier efforts to see me through this. However, last night I was told that I had no business doing anything else if I couldn't get up and go to work because I was too tired. Am I supposed to give up on all other activities???
Now I am afraid for this person to see me doing anything other than laying around.
Is it not true that I can rest all weekend and possibly still not be able to get up to go to work?
Should I not take advantage of the times I do feel like doing something be it sorting papers, taking a walk, or whatever relaxes me?
Laying around all the time gets very old when I actually have a little energy. Can I conserve it?
Thanks for your advice! I am so lost !
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I have been here before, a long long time ago and now I am back.Forgive me for not just saying what I want to say,even under a triple dose of antidepressants it is still raw and seeping and I am hesitant at revealing it as at least under the bandages around my heart I don,t have to look at how raw and wounded.My child was cleaved from my heart by his own actions. my child of ten,turning eleven...
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
A) Who is this person to judge me and try to control me in this way?
B) Do they profit somehow from my working?
C) Am I an adult human being, or a puppy who went off the paper?
Sorry, but it sounds like bullying. The fact that you use the word 'afraid' is what convinced me.
A friend? That's not one.
A spouse/partner. Not much understanding.
A boss? Do you need to change jobs?
A doc?
Listen, you can do whatever you want to. There are PLENTY of people who live on disability who do more than lay around in their beds. Really. Disability is about NOT being able to work a full time job. I know this because *I* struggled w/it for so long. TWO disabilities advocates told me to do whatever I had energy for and loved.
You too!!!
My dh has a had a hard time understanding what it was like for me, but he has gotten better since he got on line to look up what could help "cure" me. This was his way of trying to "Fix" me.
Another thing you might try is using "I" statements, to convey what you are feeling to this person. Such as, "I" feel that right now I can handle sitting here sorting these papers." I will be sure that if I feel tired I will stop and rest." But I know I will feel better when I can get this task done."
No one else knows how you feel at any particuar moment, and if you can tell someone by saying "I feel....." no one can tell you "No you don't feel that way". Unless they really are trying to completely control you.