Cerebral Palsy Support Group

Cerebral palsy or CP is the most common childhood physical disability. It is a permanent physical condition that affects movement. There is no cure for cerebral palsy, but various forms of therapy can help a person with the disorder to function more effectively. If you or a loved one has cerebral palsy, join the group to share your experience or get advice from others.

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Brain & Nervous System
/ Cerebral Palsy Support Group

want your advice - www.cpdad.com

deleted_user
deleted_user
I am putting together a new website to help fathers of children with Cerebal Palsy. I would like to hear any feedback you have. Thank you!!
sharabi-23
sharabi-23
Cerebral Palsy...Your website is www.cpdads.com..

Not sure of the goals you have for the website but here are some suggestions:

1. Explain CP at length-diagnosis, types, treatments, etc.-include a personal spin.

2. Include helpful resource links, success stories, online activities for the kids to do for different ages and abilities.

If I think of more I'll add them.
deleted_user
deleted_user
make sure you set up a q&a or discussion panel or both
deleted_user
deleted_user
What about the moms?? I think it should be all inclusive! The focus can be on dads, but I think moms should feel comfortable seeking out your site as well! xoxoxox
deleted_user
deleted_user
I don't agree with including moms their are several sights geared mainly to women you men need a site that is for you that meets your needs as daddy's so you can feel that you are not alone
deleted_user
deleted_user
Yo!! cpdad!! u aint giving us much info to go on. I'm 55 & was born w/a weak left side & i been forced to learn. There is a very wide range of cp& resources Let us know what ur kid hasd & can/not do & we may be of help!! GL
God Bless
chip
deleted_user
deleted_user
New to group, father of an 8 year old with CP, glad to give any advice on what it's like.
deleted_user
deleted_user
IF making a cpdad.com. would like see talk about CP SPORTS. if want more info. i will try to get some.
deleted_user
deleted_user
I am a mother of a former 28 weeker with CP and I know your site is very new and I am sure with time and members it will become the support site that you intended it to be. I joined March of Dimes Share site after Nia was born and there weren't many members. Now almost four years later I am a volunteer for the site and there are 30,000 members. The Share site is meant to be a support site not necessarily a information site. You can go anywhere on the net for facts but sometimes you need to talk to others who understand what your family deals with. I actually do get a lot of information on daily dealings with my child on Share but it's from other parents experiences and not from the experts; and to be honest sometimes that is the best information you can find. I think your site is great and like I said with time it will get better. You wouldn't believe the difference in Share now vs when they started. Good luck.
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