Cerebral Palsy Support Group

Cerebral palsy or CP is the most common childhood physical disability. It is a permanent physical condition that affects movement. There is no cure for cerebral palsy, but various forms of therapy can help a person with the disorder to function more effectively. If you or a loved one has cerebral palsy, join the group to share your experience or get advice from others.

255 Members
1,473 Posts
0 Online
Brain & Nervous System
/ Cerebral Palsy Support Group

want your advice - www.cpdad.com

deleted_user
deleted_user
I am putting together a new website to help fathers of children with Cerebal Palsy. I would like to hear any feedback you have. Thank you!!
sharabi-23
sharabi-23
Cerebral Palsy...Your website is www.cpdads.com..

Not sure of the goals you have for the website but here are some suggestions:

1. Explain CP at length-diagnosis, types, treatments, etc.-include a personal spin.

2. Include helpful resource links, success stories, online activities for the kids to do for different ages and abilities.

If I think of more I'll add them.
deleted_user
deleted_user
make sure you set up a q&a or discussion panel or both
deleted_user
deleted_user
What about the moms?? I think it should be all inclusive! The focus can be on dads, but I think moms should feel comfortable seeking out your site as well! xoxoxox
deleted_user
deleted_user
I don't agree with including moms their are several sights geared mainly to women you men need a site that is for you that meets your needs as daddy's so you can feel that you are not alone
deleted_user
deleted_user
Yo!! cpdad!! u aint giving us much info to go on. I'm 55 & was born w/a weak left side & i been forced to learn. There is a very wide range of cp& resources Let us know what ur kid hasd & can/not do & we may be of help!! GL
God Bless
chip
deleted_user
deleted_user
New to group, father of an 8 year old with CP, glad to give any advice on what it's like.
deleted_user
deleted_user
IF making a cpdad.com. would like see talk about CP SPORTS. if want more info. i will try to get some.
deleted_user
deleted_user
I am a mother of a former 28 weeker with CP and I know your site is very new and I am sure with time and members it will become the support site that you intended it to be. I joined March of Dimes Share site after Nia was born and there weren't many members. Now almost four years later I am a volunteer for the site and there are 30,000 members. The Share site is meant to be a support site not necessarily a information site. You can go anywhere on the net for facts but sometimes you need to talk to others who understand what your family deals with. I actually do get a lot of information on daily dealings with my child on Share but it's from other parents experiences and not from the experts; and to be honest sometimes that is the best information you can find. I think your site is great and like I said with time it will get better. You wouldn't believe the difference in Share now vs when they started. Good luck.
Posts You May Be Interested In
  • Rizen

    Walk a Day

    Posted by: Rizen
    Last Reply: mujicaptsd
    2009
    I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
  • sleepyjean

    Have you had the test with water in your ear?

    Posted by: sleepyjean
    Last Reply: Trog
    11
    My ENT sent me for more tests last week...one where they had me lie back in a chair, with blacked out goggles on so I couldn't see while they administered water into my ears one at a time ( first warm, then room-tempurature, then cold) while they video taped my eyes and asked me questions to determine how cognizant I was... This test went HORRIBLY. They were about 20 seconds or so into...