Celiac Disease Support Group

Celiac disease is an auto-immune disorder of the digestive system that occurs in genetically-predisposed individuals. It is characterised by damage or flattening to all or part of the villi lining the small intestine, which interferes with the absorption of nutrients. This damage is caused by eating anything with gluten (gliadin), a protein found in wheat, rye, and barley...

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Gastrointestinal System
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so frustrated

deleted_user
deleted_user
we found another GI dr and he was not totally convinced my daughter had CD because the other dr did not show him any papers saying why he thought it was Cd except she was having abdonim pain. so he started to do the tests over again. he even put her back on a normal diet so when he did the test they would come back with the right results. well I got skeptical that this new dr just wanted to put her through what I called the torcher tests all over again for the money. we finally got into the nutritionist and she had my daughters chart with her I saw everything the original GI dr did that was not sent to her pediatrician or the new GI dr. well I thought if you requsted records they all had to go well this office thought they were slick I went and demanded the right and full records so my baby will not have to go throught the test again. I guess what I am trying to say is just becareful with the DR you choose.
deleted_user
deleted_user
I am sorry for what your daughter is going through, it seems most doctors are not too bright when it comes to CD, it seems to stare them right in the face and they can not see it........Good Luck!
deleted_user
deleted_user
i suffered with chronic abdominal pain for 7 years before i self diagnosed myself and demanded to get tested by my doctor to confirm something that he told me was impossible for me to have. turns out i was right. i was 20 when i was diagnosed. i suffering for 7 years, in and out of hospital, severe anaemia to the point of hospitalisation, blood tests, injections, opporations, servely underweight because i was not absorbing anything. they put it down to neurological. the doctors said that it was all in my head. i knew it was real. depression and feeling i was crazy was a huge issue for me, so i tended to put off telling anyone when i felt sick to the point of passing out in pain, which is when i would be taked to hospital. i finally seeked help through my own research, and demanded to get testing by several different doctors, who all refused to test me, when i just couldnt keep anything down, and i would be throwing up 3-4 times a day. i definately feel for you. it is very frustrating when doctors cant give you the right answers when they are there to.
deleted_user
deleted_user
I'm sorry to hear that your daughter suffers. The bottom line is no one knows your child, better than you do. You might be looking for confirmation, and you might never get it. Let's face it...an M.D. is a medical doctor...most of them want answers in black and white, and most of them don't focus on diet when looking at "symptoms". It's a sad "health" system out there. If your daughter is doing well on a gluten free diet, I say Bingo...you've got your answer...forget what the tests say.
Good luck
deleted_user
deleted_user
Alot of MD`s know very little about CD and how food allergies can get you sick. Also I have noticed, that if they don`t know much, they tend to want to cover up their "ingorance" of this issue by ordering tests and being the authority when they aren`t one.
You are going to get alot better info about CD from people who live with it. (Right Here) Remember, that
CD is a very grey area for test results. Even if they come back fine, she still may be much better off on a gluten free diet. I have heard that up to 1 of 3 people are somewhat gluten intolerant. That`s huge! No one needs to eat wheat to stay healthy. We could all do very well without it. But can you imagine what would happen to that whole part of our economy if it got out that that basic staple carb of the American diet was making alot of us sick? Plus not even to mention the amount of lost revenue for the pharmacutical empire.
If you ever know an MD on a perasnl basis outside of work, he knows the game too and will probably admit that this stuff goes on.
Do what you think is right. Her body and health will tell you what is going on. But again, none of us Need to be eating gluten.
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