YES! i had dermatitis herpetiformis (i think that's how it's spelled) with my onset of celiac disease. my mother and sister, who also have CD, do NOT have DH. i've have read, many times, that it's mostly a symptom in patients with little or no symptoms, but the exact opposite is the case for me. it was the most horrible, burning, itching, rash i have ever experienced. i feel for your mother! you have my love and support! xo

the dermatitis herpetiformis was the way i knew i had celiac disease. the rash started in 1962 celiac in 2001

I have DH also. It is not very common in Celiacs. Not all Celiacs get the manifestation on the skin. You are so lucky you don't have it--its horrible.

I itch everywhere all the time. I have no rash, but the itching is enough to drive you out of your mind

I also have what I think is chronic urticaria, basically I itch sometimes all over, but I was thinking maybe is related to Gluten in the laundry soap, but I haven't been able to call the manufacturer. What do you think?

Until I got on the gluten free diet I was having severe itching. It calmed down considerably after being on the diet, but I've had some flare ups where I get what I call popcorn itch. It can pop up anywhere--travels around. At times certain areas itch more. Strangely the top of my head itches most of the time. When I scratch a small itch, it seems to travel to other spots. Better not to itch but at times the itch can't be not scratched or like some say, it will drive you crazy. I have not had much rash, a little a times. I can be about 95% free of itching for periods and then it comes back, sometimes just a little, at times a little more. I meet with my Dr soon and want to ask him about this. He felt that being on the guten free diet would eliminate the itch and other symptoms. If I get any good remedies, I will share.

I have learned you can itch and still not have the rash or blisters. I itch in my ears, eyebrows, just about everywhere and not necessarily get a rash in that area.I have also learned that having DH has made my skin sensitive to other things. A skin biopsy (next to a blister )is the only way to be diagnosed. I use Dove sensitive soap. This helps alot. I stay away from frangranced and perfumed substances on my skin. Tide and Gain are gluten free. Others are too but I will need to look them up in my info file. Before I was diagnosed I felt like this itching would make me lose my mind. I wanted to peel my skin off my entire body to get relief.Thank God for the GF diet and Dapsone.

Hey guys, I had an interesting conversation with a good friend the other day about an itching problem her son had. Thought the info was interesting and wanted to throw it out to you guys.

He started itching intensely, to the point of not getting any relief, couldn't sleep at night, went for tests, doctor to doctor, no real help from them - spent $2000 on all the medical route. Was told that it could be Celiac and that severe itching could also be a precursor to a type of lymphoma cancer! They were just freaked out!

In the end, they went to a naturopathic person who immediately said it was scabies!! They treated him and their stuff, etc. and that's what it was! Weird, huh! The other doc's didn't diagnose it!

I haven't looked up the cancer thing yet, but might be one of those things that is good to know so that itching could be checked out in light of that possibility. :)

I don't have any rash or ithcing, however the dryness of my skin is comparable to a crocodiles' :/

my skin is much dryer and itchier than usual. Plus, I have this rash on my face. It's on my forehead and my cheeks.