Celiac Disease Support Group

Celiac disease is an auto-immune disorder of the digestive system that occurs in genetically-predisposed individuals. It is characterised by damage or flattening to all or part of the villi lining the small intestine, which interferes with the absorption of nutrients. This damage is caused by eating anything with gluten (gliadin), a protein found in wheat, rye, and barley...

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Gastrointestinal System
/ Celiac Disease Support Group

I need guidance desperately help

deleted_user
deleted_user
I have read up on celiac sprue.


unfortunately i don't have the means to be properly diagnosed with what kind of celiac disease i have. but my boyfriends mom is a nurse and has all the medical books. so we were reading and she told me that i could possibly have small intestinal failure when i get older and have children with "ritters" if i don't keep myself from gluten. is this true? i am very worried- it's insanley hard for me to keep gluten free. becuase even my parents serve me things without telling me it's gluten free- i ahve leanred to always look myself but even in restaurants when they say it's not i later find out (by becomming sick) that it must have been--


i'm kind of nervous about this-
can somebody give me more insight about the problems that are possibly erupting?
omastoy
omastoy
It is very important to remain GF for the rest of your life. The outcome if you do not is CANCER. My dear friend just had Lymphoma return after being in remission for 6 months. Lymphoma is hard to cure because of all the Lympnodes through out our body. Go to Ladywinger's profile and read about her. She just found out her cancer is back Wednesday.She got Lymphoma because of Celiac Disease.Please take this seriously and stay Gluten Free!!! Ask me any question you would like.
omastoy
omastoy
https://www.enterolab.com/Home.htm This lab has a test for Celiac. It is siply a stool specimen that you collect at home and send it to them. I think it cost about $150. You do not need a doctor to prescribe it. I went to look up on profile on DS site and see you are only 18. Eating gluten could also affect your ability to conceive and carry a baby full term. Again it is very important to remaind Gluten Free.
deleted_user
deleted_user
thank you very much i really appreciate your insight on this
deleted_user
deleted_user
IF I WERE YOU I WOULD GET THE TEST THAT OMASTOY REPLIED AND WHEN YOU HAVE A SECURE REASON TO TELL PEOPLE THAT YOU'LL GET CANCER FROM THE FOOD, THEY'LL UNDERSTAND. I HAVE TO TELL MYSELF THAT LITTLE BIT OF FOOD I WANT TO TRY THAT I KNOW HAS GLUTEN IS CANCER IT'S HARD BUT IT'S BECOMING MORE RECOGNIZED AND MORE AVAILEABLE AT CHEAPER PRICES. ONCE YOU FIND THE FOODS YOU LIKE STOCK UP AND BE CREATIVE WITH THOSE FOODS AND AT RESTAURANTS PEOPLE WILL THINK YOUR FAVORITE FOOD IS SALAD.BE STRONG AND LIVE LONG!
deleted_user
deleted_user
My son is 5 1/2 years old. He was misdiagnosed when he was 2 1/2 years old. For 2 years he was on a regular diet from this it has caused Autism, chronic pain and depression. I have also read that it can cause Schitophrenia, cancer, fibromyalgia, and eventually death. Try a "transglusamine test". It is a basic blood test....testing IGA, IGB, etc. This can give you a baseline of if you have it or not. GOOD LUCK!! :)
deleted_user
deleted_user
I agree...get the test if you can. However, know that if you have the symptoms, the treatment will be to be gluten-free no matter what. It is a lifestyle-change, but it is much better than being sick for the rest of your life!

IMO it is absolutely impossible to be 100% gluten-free unless you eat strictly at home all of the time. However, if you do attempt to control everything you eat, at restaurants and at friend's and relative's houses, you will be doing all you can.

There are times a person must eat out. When you are travelling, for example. When I travel, I have certain chain restaurants that I eat at because I have learned they use only 100% pure ground beef, for example, in their hamburgers. Ask them. Most places are becoming more aware. Especially national chains. Most problems come with small-town local restaurants.

As I said in answer to a recent post, I gave up everything except meat, veggies, rice and potatoes, and then added food back as I found out it was acceptable. Become a label reader. Know your ingredients. There are lots of sites online to help you out.

If you explain to your friends the situation, most people are fairly tolerant. In fact, most people know someone else in the same situation. You'll be surprised how many people have the same situation you do!!!

I also cannot eat msg and, like has been discussed here, dairy....talk about restricted diet!! But it's been over 12 years for me, and I'm used to it.

You will get used to it. It is very hard at first, but the cravings eventually go away. The gluten free alternatives do help the cravings. Especially the donuts, cookies, etc. My kids actually prefer my cookies to theirs. And the mixes cut down on the expense a lot.

Wishing you all the best! Hope this site helps you in your new lifestyle!
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