I am so sorry about your pain! I am in the same boat as you. You have made a wonderful first step by joining this online support group!! I had to start REALLY basic with my food after I had several setbacks being glutenized by accident. I ate LOTS of rice (you'd be surprised how many different ways there are to fix rice!!) I really had to stay away from all fruits, veggies, meats, etc. at first. My stomach was just too damaged to digest it even though it was gluten free. My suggestion would be to start very bland and basic then expand from there. As time goes you can add more and more to your diet. I dealt with and still deal with a lot of depression about eating. It seems like everything revolves around food sometimes. I really do have to work everyday at grieving food and missing the food I can't have anymore, but my quality of life is improving everyday (although a little slower than I'd like). To sum up.... the bad days do get better!! The good days get better too!! You will learn not to be imprisoned by food anymore!! The gluten free food will taste better and better!! There will be bad days and days where you have been glutenized, but they will become less often and less often. I hope this helps! I may write you next week and need this same pep talk!! The road to recovery seems very lonely....but we are all here to help! Take care!!

WOW Pammy that was a mouth FULL! And so nicely said. It is great to hear for a newbie like me. I have only been on the board for one day and already I feel inspired by reading comments such as yours. Ales22, hang in there...I think our good days are on it's way!!

Ditto what Pammy said...the bad will get better and less often in time. The good will just get better....but, don't get depressed if a bad day sneaks in. I have been gf since March... In the beginning I ate a LOT of rice and potatoes....now, I only prepare one or the other maybe once a week...I am eating lots of protein, veggies and fruits. As Pammy said, give your system a break and go bland for a while....let your body rejuvenate. We are here to help and support.

Thank you all so much. Today is a little better, I have only eaten, well, mostly rice today, but I am not in as much pain and I am in a much better mood. Thanks for the suggestions I think that I will have to take it easy on my system like you said Pammy. Thanks again.

I went through a depression time and also got angry sometimes. We grieve what we lost. Going to a restaurant or eating at someone else" home made me want to cry because it was so difficult. Depression is also part of Celiac disease. It affects most of our organs.Luckily I am from Cajun country and we cook alot of rice with gravy made from the browning of meat (no flour). I always cooked everyday so it was easy at home.I also have DH and didn't have too much intestinal problems so I ate lots of fruit and vegetables until I learned what contained gluten.It took 3 years to clear my skin from the gluten collected underneath but now I've finally stopped breaking out unless I accidently get cross contaminated. in the beginning I kept lots of ice cream and Hershey bars around for when I craved food I couln't have-it humored me but also made me gain weight-Ha Ha! Things will get better for you in times. Just try to be patient and remember the things out there that you can eat and try to be thankful that your disease can be control by diet. Some people don't have that option with diseases they have. Good luck!

HI, and I know what you are going through. Isn't that nice to hear? I love having this place to come to. I don't personally know other celiacs, so this site is really a life line for me.

The crying thing I TOTALLY get. I cry every other day, it seems. Like others have said, there is a mourning process to get through, and that just takes time. Also I am terrified to put stuff in my mouth. My friend says that I look like an Anorexic when I eat. You know, warily poking food in my mouth? It's silly, and I can laugh, but it is also kind of true. I am suspect of everything I put in my mouth these days.

I have one thing to add to everyone else's excellent advice: don't forget to keep ingesting fiber, whether through veggies or pills(gluten free, of course!). I have a secondary diagnosis of IBS caused by Celiac, and the cure for that is also palative, or in other words, you can cure yourself by eating better.

I can't believe I'm telling someone to "eat their fruits and veggies!"

feel better, sweetie.

Hey, the bad days get better. I've been diagnosed with CD for over a year now & I still have pain frequently. I also had to quit drinking milk, I love milk, but it wasn't good for me either! I was majorly depressed for a few months & still get angry about my missed food, but it does get better! So, hang in there & keep talking to other CD's like us.
Robbie

I too, can relate to the frustrations of what can I eat. Sometimes if felt like I could not eat anything and didn't know what to eat. I have been off work since 4-17-07 and had lost down to 92 #'s. Now I am 5'7" and have always been a very healthy, full figured, vuluptous woman, but after a severe downward spiral which started towards the end of 2006 I have become this weakling that cannot do much of anything due to the fatique. Like many I became so sensitive to many things that GF did not seem to be helping much, but I continued with the GF diet and started little. Chicken and rice, rice or grits for breakfast, thank God I love turkey. I would go like that for a few days and then introduce a new (old) item like onions, hamburger meat (bad move) bacon, squash (awesome), Yams (miracle food) until I felt like I could eat whatever I wanted. I am so optimistic and I am still learning how do cook all over again. I made some of the BEST GF Country fried chicken you have ever put in your mouth. I will have to admit I am still working on the country gravey because I cannot seem to get that NEW recipe down (but trust me I will). I was born in AL and raised in TX so I don't thing I could go too long without biscuits & gravey, but I am still working on modifying recipes and having a great time doing so.

Start little, keep a food journal so you can backtrack and see what got you. Then you will be able to make better choices, decisions, or changes. Even journal for a couple of weeks you also see that you are getting more than you feel like you are being deprived of.

I too grieved after I was diagnosed with CD. I have broke down and cried in restaurants. I have been angry. I have been frustrated. And I go through some periods of time when I feel all of those things again. But as time goes on the duration of those feelings lessens. It's all normal. I have only been with this discussion board a short time, but it has made me feel more "normal" as I have read other people's experiences and have been able to relate them to my own. Reading and researching has also helped me. For me the more I understand the easier it is for me to apply the GF lifestyle. There is a good magazine called Gluten Free Living, several books and national organizations. Soon the bad days will become fewer and more bearable. Get support when you need it. Give support to others who need it. It is amazing what a little understanding among gluten free friends can do! Take care.