My son has duchenne MD and although he deals with his disability, and the need for 24 hour care very well he refuses to talk about or think about " the end" as a mother i can't believe i am even writing these words, but i can't help thinking perhaps he should be coming to terms with this, making his peace ect, i worry about my other children as its never been a conversation we've really had, i have tried to talk to my son about it, and he gets ever so upset should i let sleeping dogs lie? or push the issue, i want whats bestt for him, i can tell he's deperate to talk about it but can't bring himself to. Everything is masked with humour in our house its the way we've all coped with everything life's thrown at us, but i can't help but wonder is it time the laughter stopped and time we dealt with an imminent issue? any help past experiences would be useful. Apologies if i speak quite frankly, its just for me i have always known the outcome of christophers illness and how prescious our time with him really is. I worry that as his mum i can be overbearing and over affectionate, perhaps is his dad was around he would be able to talk? Many Thanks Jo (chris's mum x )
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