Caregivers Support Group

A voluntary caregiver is a spouse, relative, friend or neighbor of a disabled person or child who assists with activities of daily living and assists those unable to fully take care of themselves. The challenges of a caregiver are unique and sometimes it's hard to find people to talk to who know what you're going through. Join the conversation and find others who...

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What do you need?

deleted_user
deleted_user
Recently in dealing with my brother in law who has MS and two other friends with cancer I have noticed that they all have many needs. They somehow fall into this "gray area" where they need help but most organizations say they are too young to qualify for services. I am starting to think that maybe I should start some kind of organization to help fill these needs. As an individual I just can't help them all on my own, but something must be done. So for now I guess I would say I'm in the research stages in trying to find out how to go about doing this and what exactly are the most pressing needs of these people who are falling through the cracks. What things do you find yourself needing that your insurance and/or medicare won't cover? Or that age is preventing you from qualifing for?
deleted_user
deleted_user
I have no needs, at the moment, but I offer you a high salute in your efforts to address this. May I suggest that you consider doing this as a non-profit organization? That way, you can get the donations you need (money, materials and people's time) from well heeled people and organizations who want tax write-offs. GREAT IDEA, BY THE WAY!
deleted_user
deleted_user
Ah... I thought I posted this on a different group! But... some of you know people in this situation too. TIA! :)
deleted_user
deleted_user
Don't know about the U.S..... In Canada, it is very hard to find affordable, accessible living arrangements if you are not over 65. We got into our accessible apartment (in a building that combines "regular" and fully accessible units for all ages) after being on a waiting list. There are very few such places around, though.

Most places I have looked at boast their "mature lifestyle" as an asset. We don't have kids and we're not loud, but these places won't have us because neither of us is close to being geriatric.

Wonder if this is the same situation elsewhere? Anybody else whose loved one(s) need wheelchair/walker access at home, long before a "retirement" community is a practical or desirable option? What do you do?
deleted_user
deleted_user
Hannah we have the same problem here in the states. Either you go on a huge waiting list for low income housing (currently it's 5 years for my BIL) Or all the other wheelchair accessible apartments are 55 and older only.
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