When most people think of caregiving, they associate it with the elderly, and/or those that are home bound. What I want to know is if there is anyone out there in a situation like mine.This whole scenario may seem odd to most of you. I am physically disabled and I care for two people in my life. One of those people live with me and is severely mentally ill and I must supervise in order to protect that person. The other lives in a house 13 miles away and she has had 19 motor vehicle accidents as a passenger. She has suffered major head trauma/coma as well as has major health problems. I took over her health care, appointments etc. when she developed breast cancer in March of 2005. She cannot set up her appointments, medications, etc. by herself because of her cognitive impairments. Doctors had refused to care for her when I came on the scene because she couldn't remember her appointments. There is no one in either family that will help with their care. Is there any help available for me to help them? Multiple times when I have been in the hospital, I spend time on the phone with their doctors trying to keep everything under control. I am on disability and any savings that I had was used seeing to it that she went thru her chemotherapy, doctors, nursing homes etc. Are there agencies that can help with this sort of thing? I am concerned about what will happen to them if I die. I want them to be as independent as possible.
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