I recently did some research on Pompe' Disease and looked up a injection that was mentinoed by doctor at Barnes Hospital. I did find info about a clinic that is using injections. I also found that the injections cost $300,000.00 a year. Do they provide the injections? We are not 100% sure that husband has Pompe' disease but they are leaning that way. Thank you for any input you can offer.
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