Carcinoid Syndrome Support Group
Carcinoid syndrome refers to the array of symptoms that occur secondary to carcinoid tumors. Carcinoid tumors are discrete, yellow, well-circumscribed tumors that can occur anywhere along the gastrointestinal tract (GI). They most commonly affect the appendix, ileum, and rectum. These tumors are unique in that they are endocrine in nature.
Hi, I'm looking for someone to chat with, I feel this cancer has taken a toll on our sex drive and marriage. Is there anyone in here, that I can talk too?
deleted_user
There is a carcinoid conference in September in VA that you might want to look into. I have carcinoid so I might be able to help you some.
deleted_user
My husband has carcinoid too. It is certainly a challenge dealing with this. He's undergone two operations and they say no mor surgeries. Now he is on Sandostatin. Let me know what you need.
deleted_user
unfortunatley this disease inhibits your libido (sex drive)and causes Erectile Disfunction.I'm sure this is very hard on you but from a mans point of view it's the worst thing that could happen to you. your husband no doubt feels a deep sense of guilt and low self esteem even though it's not his fault. This doesn't mean that he doesn't love you. some drugs like viagra do work, this will give you sexual gratification but he wont get it even with pills. I'm going through this myself my Wife loves me alot but this is still a major sore point in our marriage. sorry for tha bad news.
deleted_user
My husband has gastrinoma a form of carcinoid tumors. I know what you are going through. I have one child and the treatments take a toll on every aspect of your life. Just remember, it is better to have them with us no matter what. Take it one minute at time or if you can one day at a time.
Join the Conversation
-
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
-
Today is my 25th birthday, to my somewhat lack of surprise I can see already no one really seems to care. I've always been the kinda person to make sure that everyone I Care about feels appreciated and knew somebody had their back. I can count 4 times this year when I Went out of my way to make sure a "friend" felt good on their birthday, especially if they got left hanging. Its early in the...