Carcinoid Syndrome Support Group
Carcinoid syndrome refers to the array of symptoms that occur secondary to carcinoid tumors. Carcinoid tumors are discrete, yellow, well-circumscribed tumors that can occur anywhere along the gastrointestinal tract (GI). They most commonly affect the appendix, ileum, and rectum. These tumors are unique in that they are endocrine in nature.
Hi, I'm looking for someone to chat with, I feel this cancer has taken a toll on our sex drive and marriage. Is there anyone in here, that I can talk too?
deleted_user
There is a carcinoid conference in September in VA that you might want to look into. I have carcinoid so I might be able to help you some.
deleted_user
My husband has carcinoid too. It is certainly a challenge dealing with this. He's undergone two operations and they say no mor surgeries. Now he is on Sandostatin. Let me know what you need.
deleted_user
unfortunatley this disease inhibits your libido (sex drive)and causes Erectile Disfunction.I'm sure this is very hard on you but from a mans point of view it's the worst thing that could happen to you. your husband no doubt feels a deep sense of guilt and low self esteem even though it's not his fault. This doesn't mean that he doesn't love you. some drugs like viagra do work, this will give you sexual gratification but he wont get it even with pills. I'm going through this myself my Wife loves me alot but this is still a major sore point in our marriage. sorry for tha bad news.
deleted_user
My husband has gastrinoma a form of carcinoid tumors. I know what you are going through. I have one child and the treatments take a toll on every aspect of your life. Just remember, it is better to have them with us no matter what. Take it one minute at time or if you can one day at a time.
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I have had Ttp twice this year I'm 48 my doc said the next time Ttp happens they will take my immune system. Has anyone had this done? Does it work ? What other problems do u get?
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
