Carcinoid Syndrome Support Group
Carcinoid syndrome refers to the array of symptoms that occur secondary to carcinoid tumors. Carcinoid tumors are discrete, yellow, well-circumscribed tumors that can occur anywhere along the gastrointestinal tract (GI). They most commonly affect the appendix, ileum, and rectum. These tumors are unique in that they are endocrine in nature.
Hi, I'm looking for someone to chat with, I feel this cancer has taken a toll on our sex drive and marriage. Is there anyone in here, that I can talk too?
deleted_user
There is a carcinoid conference in September in VA that you might want to look into. I have carcinoid so I might be able to help you some.
deleted_user
My husband has carcinoid too. It is certainly a challenge dealing with this. He's undergone two operations and they say no mor surgeries. Now he is on Sandostatin. Let me know what you need.
deleted_user
unfortunatley this disease inhibits your libido (sex drive)and causes Erectile Disfunction.I'm sure this is very hard on you but from a mans point of view it's the worst thing that could happen to you. your husband no doubt feels a deep sense of guilt and low self esteem even though it's not his fault. This doesn't mean that he doesn't love you. some drugs like viagra do work, this will give you sexual gratification but he wont get it even with pills. I'm going through this myself my Wife loves me alot but this is still a major sore point in our marriage. sorry for tha bad news.
deleted_user
My husband has gastrinoma a form of carcinoid tumors. I know what you are going through. I have one child and the treatments take a toll on every aspect of your life. Just remember, it is better to have them with us no matter what. Take it one minute at time or if you can one day at a time.
Join the Conversation
-
Hi all! This is for those of you that have or have had the same neurologist for 4 years or more. I have been with mine now since 2009. He is one of the best movement disorder secialists in the midwest. I know he is extremely busy on the lecture circuit now and in fact not taking new patients there is a huge waiting list for him. BUT.... I feel like my visits are not what they use to be. He...
-
I gave my 2 week notice last Friday 13th. Now to join you fine people in a life of leisure and nothing else to do but to look out for myself....is it just me or does that sound pretty boring? My goal was to live to retire and I guess having to take early retirement because of health reasons wasn't exactly the way I had planned things. I just can't stay in that building that is reeking mildew...
