Carcinoid Syndrome Support Group
Carcinoid syndrome refers to the array of symptoms that occur secondary to carcinoid tumors. Carcinoid tumors are discrete, yellow, well-circumscribed tumors that can occur anywhere along the gastrointestinal tract (GI). They most commonly affect the appendix, ileum, and rectum. These tumors are unique in that they are endocrine in nature.
My husband is coming up on his three month check-up for neuroendocrine carcinoma. He is on Sandostatin now. Has been on it for about 6 mos. now. We are crossing our fingers and hoping that there are no more tumors in the liver. I will be giving him his next shot on Monday and then we will be going to H. Lee Moffitt, Tampa FL on Tuesday for all the testing.
This is Charlie's third occurrence of tumors, so no more surgery. There are currently about ten tumors in the right side of the liver. Hopefully, between his chromogranin level and the three-phase CT-Scan we will get some good news on Tuesday.
Keep us in your prayers.
This is Charlie's third occurrence of tumors, so no more surgery. There are currently about ten tumors in the right side of the liver. Hopefully, between his chromogranin level and the three-phase CT-Scan we will get some good news on Tuesday.
Keep us in your prayers.
deleted_user
You are both in my prayers, I can Identify with what you're gooing through, It seems I get golf ball to baseball size tumors every couple of years. Good luck and God Bless
deleted_user
How did your trip to Moffit go? Is your husband seeing Dr Kvols? He is very good I hear, but conservative with treatment.
deleted_user
My husband's cancer had become active again (his chromogranin A is high) and his tumors are growing. Our doctor has recommended chemotherapy, Temador and Zeluda. They evidently have been having some success with this. Unfortunately, our insurance has denied coverage. We are working on finding away to appeal this or get the drugs elsewhere.
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