What kind of pain is it?

I develped nuerapathy from my chemo! I take lyrica for the pain. My pain is mostly in my hands and feet! Some days it isn't to bad so I don't take the lyrica. I never know what caused it to flair up,,,I am on tamoxifen and that also causes muscle and joint pain.

hope you find some answers!

sfj

I'm sorry to hear about your leg pain. I have a 5 and 8 year old and relate to them wanting Mommy to play all the time. Are you taking Tamoxifen? If so, it has possible side effects of blood clots, leg cramps, and menopausal arthritis. It's definitely good to get it checked out. I've been on Tamoxifen for a little over a year and am only now having severe arthritis, mostly in my hands, feet, and shoulders/neck. I have read a lot about women having leg cramps, too. Since Tamoxifen and the other aromatase inhibitors cause estrogen depletion, this lack of estrogen can cause arthritis, muscle aches, lower pain tolerance, and cramps. I don't think all oncologists are that familiar with it, either.
And then if you had Taxol, I think it can have delayed effects, too. I hope this helps and I certainly hope you feel better soon. Please take care.
Vicki

thanks for the feedback. i was on tamoxifen and the leg pain was awful. my oncologist took me off of it. i went for a shot in my belly(cant remember the name but it was once a month) i had 2 of them.she decided well i did to have my ovaries removed. so i had that done in march. i dont understand this pain and why they cant figure it out. i saw the dr yest and he started me on lyrica. i have only had 2 doses so far. he sd it can take a week to kick in.i went to boston this week to see a different oncologist and he doesnt know why i was taken off of tamoxifem he sd i should be taking something for 5 years. so i have an appt in nov with my new oncol so i will question it. i am so confused!!!!! i am starting to hate doctors. they always give us the run around. anyone else feel like this.
another thing i am so pissed off at the place i had my mammos. they told me it was normal and then 10 months later i had a tumor 5cm. my moms friend is a radiologist and she read both and the tumor was in the 1st mammo. if they caught it then i would have still had 2 boobs. grrrrrrrrrr......sorry i need to vent. lol we all do sometimes.
thanks again
elaine

I don't blame you at all for being frustrated. The whole reason they do mammograms is to catch tumors early so they can be treated. My MiLaw had a tumor for 5 years that her Radiologist said was nothing. By the time she got a second opinion, it too was 5 cm and had spread throughout her lymph nodes. The good news is that she is a 16 year survivor.
As for the leg pain, did they check for any sort of clot, tenderness, etc.? I truly believe there are a lot of side effects to the hormone drugs that doctors don't really know or think about as they are not listed on the patient pamphlet. Also, if your estrogen is lowered from having your ovaries out, that low estrogen causes a lot of side effects, too. I have been reading a lot on this lately as I have been feeling crappy, too, and my oncologist hasn't really made much for recommendations. I am on Mobic, but I don't think it's helping. My good chemo friend had her ovaries out last November and is on Arimidex for the 5 years. We were both told that if we had our ovaries out, we'd take Arimidex or Aromasin for the 5 years to stop any estrogen driven tumors.
I am really interested to see how the Lyrica works, as my pain worsens daily and I need to take something better for pain or stop the Tamoxifen, which I'm trying not to do. Please take care and let me know how you do.
Vicki

I had rads, not chemo, but some I know who underwent chemo say that the leg pain is a really bad side effect. Sorry to hear...but you are still here. Thank the Maker for that.