Brain Injury Support Group
Traumatic brain injury occurs when a sudden trauma causes brain damage. TBI can result from a closed head injury or a penetrating head injury. Symptoms of a TBI can be mild, moderate, or severe, depending on the extent of the damage to the brain. Outcome can be anything from complete recovery to permanent disability or death. A coma can also affect a child's brain.
I have annother on Monday 16th.
They think I'm having seizures, but all they find are awkward brain waves. I lose speech and zone out (petite mal) and other times I start shaking and lose speech.
I don't have a driver license anymore and my memory at times is crap. It really tears at me emotionally, like today, but other days I'm happy and fine!
I've already got severe migraines and tension headaches, but there is more to all my ordeal apparently.
Your thoughts, advice, words of hope/encouragement?
At one point it was brain swelling they saw, then it was fluid... My eye pressure was 22 and 23 last month.
sunshine
They think I'm having seizures, but all they find are awkward brain waves. I lose speech and zone out (petite mal) and other times I start shaking and lose speech.
I don't have a driver license anymore and my memory at times is crap. It really tears at me emotionally, like today, but other days I'm happy and fine!
I've already got severe migraines and tension headaches, but there is more to all my ordeal apparently.
Your thoughts, advice, words of hope/encouragement?
At one point it was brain swelling they saw, then it was fluid... My eye pressure was 22 and 23 last month.
sunshine
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I have had Ttp twice this year I'm 48 my doc said the next time Ttp happens they will take my immune system. Has anyone had this done? Does it work ? What other problems do u get?
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
I couldn't drive for about four months while trying to regulate my seizure meds when I was first diagnosed. Luckily I lived in a small town and I had good friends to help me get places. It really is a drag when you lose the freedom of driving.
I'm not sure what encouragement I can impart, except to tell you that I've experienced similar things. Talk to me anytime.
-Paige
take care of yourself
sunshine
My wife says it made me a pain in the ass (more of one). I went through the mandatory period of no-driving here in MO and it was a pain, so I'm with you on that. In St. Louis you need a car. In DC (where I was when first diagnosed) I was okay because there's plenty of public transportation, but here you need a car.
I just finished two years of treatment for an AVM (arteriovenous malformation--basically varicose veins on the surface of the brain). Six embolization procedures, each an inpatient thing, and most recently "gamma knife" radiation to shrink what's left.
Immediately after the procedure, I sat up on the bed and looked at the 20 or so medical staff, including doctors, nurses, a physicist, etc. in the room and thanked them for helping me make it the 14 years--almost to the day--from my first rush to the hospital with a seizure to the end of treatment. I had reached the light at the end of the tunnel.
Stay positive and focus on what you do have that's great in your life. And know that there is light at the end of the tunnel, no matter how long it is. Medical science has improved so much from when I was first diagnosed with an AVM, so I am sure it has for other areas as well.
AdamG
your siezure activity sounds very similar to the siezures that my fiance has had post TBI. zoning out, brief spasm, no loss of consiousness. he had adequate control with tegretol and keppra for a few months, but with most drugs, the body becomes tolerant. his dosages have been changed and he is no longer having any siezure activity. i looked on your page and saw that you are on topamax. for migraine prevention or siezure prevention? first off, this is a red flag, topamax is contraindicated in BI patients, due to mental slowing and possible increased ICP and papilledema(changes with the pressure behind the eye). instead they prescribe depakote- works on the same symptoms as topamax, but safer for those with neurological problems. hope that helps, if you have any questions feel free to email me...