Brain / CNS Tumors Support Group

A brain tumor is any intracranial tumor created by abnormal and uncontrolled cell division, normally either found in the brain itself, in the cranial nerves, in the brain envelopes, skull, pituitary and pineal gland, or spread from cancers primarily located in other organs (metastatic tumors). Brain tumors may be benign or malignant.

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epidermoid cyst/benign tumor

I recently had a MRI to rule out MS and I was told I have a descent sized epidermoid cyst (15mm) and was referred to a neurosurgeon to figure out what the next step is. I am seeing the surgeon tomorrow. I have myself all worked up about possible brain surgery and I have been googling like crazy. I am on daily strength with another group (dermatomyositis) and I thought I'd put a post here to see if anyone had any similar experiences.
Thanks
Maruska

Replies

deleted_user
deleted_user

Stay strong. Depending on where the cyst is located they may be able to remove it. Brain surgery sounds scary, but it may be a good option. There of course is risk involved, so make sure you are informed about the procedure and have confidence in the surgeon.
deleted_user
deleted_user

Thank you for your supportive response. I met with the surgeon and he said I do not need surgery at this time we are going to watch and wait. He was very confident and helped put me at ease. You are right, brain surgery sounds scary and it can really play a number on your mind. I still have some neurological issues that are a mystery but I feel better about this.
Thanks,
Maruska