Hi, I'm not sure if this is the right place to post this or not. I'm new to this site. My son was diagnosed with CS Night Blindness, Nystagmus and Retinal Dystrophy when he was about 7 months old. I'm wondering if there is anyone here that has gone through this diagnosis or has kids that have/are. I would love to talk to others about things that I can do with my son to help him function better in life. We are on a waiting list with the CNIB, but that could take forever (they're short staffed). For the most part he functions pretty normal. He can see, we're just not sure how far, or how good. He's only 1 and can't explain to us yet. On a good note, we have been blessed b/c he had an MRI (most horrible experience of our lives) when he was about 7-8 months and it showed that he has no brain damage - he is otherwise completely normal. The Dr's wanted to make sure b/c mental problems can occur if there are eye issues.(or at least that is what they told us)Thank you in advance and I hope to hear from you!!
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