I have a beautiful son Ruben whom is know 5 months old and is currently undergoing several tests including MRI scans to try and give us a diognosis of his condition. All i know is that Ruben has pigmentary changes to both retina,s and lack of blood vessels the opthalmologist is working closely with the neuorologist to try and give me answers however they seem mythed with Ruben,s condition. I pickes this problem up when he was around 6wks old he rolled his eyes as if he had wind!! also did not focus and follow me round the room as babies normally should do. The gP told me all was fine on 8wk development check however 2 wks later he was refered through my persistance!! I know anxiously await for the results. Retcam images were taken of his retina,s which are being sent to forums around the world literally...other than Rubens eyes he is developing as any normal child and is very content and happy..has anybody been through similar situation or does this sound like someone you know etc...i,m so frustrated waiting for any news..
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