I've been trying to find others with RP and compare notes. There seems to be noone near me that can even relate and I wondered..would anyone be willing to share their situation with RP and what they have experienced with their sight? Because this disease is so uncertain, I find it a bit of a comfort to know what others experience so I have some ideao f how my pattern of vision loss compares. Don't want to make anyone uncomfortable though.
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My significant other recently had a flu shot, two days later he was in the hospital with optic neuritis, which is a rare side effect of the flu vaccine. Solumedrol gave him no relief. They tried again and he is tapering off prednisone now, but will probably not regain sight in that eye. Since the left optic nerve is connected to the right one, he has extreme light sensitivity and is wearing...
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