Bladder Cancer Support Group
Bladder cancer is a disease in which abnormal cells in the bladder multiply without control. The greatest risk factor for bladder cancer is a genetic predisposition; it's also associated with smoking and occupational exposure to certain dyes (such as in textile factories), petrol and other chemicals. If you or a loved one has been diagnosed with bladder cancer, we're here...
Dec 06 I was diagnosed, Feb 07 had surgery, but could not get at one tumor, so was scheduled for BCG with laser removal of a tumor in June. Sep I went back for a checkup and they found more. The BCG was a waste of time. My local doctor recommended bladder removal...GASP.... Went for second opinion. October 07 went to see another doc in Boston and he removed tumor and had second round of BCG. Scheduled for followup cysto on 5/5, but passing some blood, so figure he will remove more tumors.
They say I am too heavy for a external bag. which leaves the Indiana pouch, made from large intestine, or a neobladder using large and small intestine. I have heard that the neobladder leaks alot and many people endup with diapers.
IDEAS??? Answers? Advise? Help???
They say I am too heavy for a external bag. which leaves the Indiana pouch, made from large intestine, or a neobladder using large and small intestine. I have heard that the neobladder leaks alot and many people endup with diapers.
IDEAS??? Answers? Advise? Help???
deleted_user
I would like to leave a hug here for you. I wish I had the answers etc..... I will look into the indiana pouch, my husband will prob need this surgery in near future. My sincerest best wishes to you.
deleted_user
I am on two websites which are considered the best regarding bladder cancer. One here in the States and one in Germany. The one here in the states is called Bladder Cancer Web Cafe. What I hear is that the Neo Bladder is the best solution. There may be some problems later but they can be handled. I would suggest you go to that website and get all the info you need.
deleted_user
and good luck tomorrow... don't give up...
Join the Conversation
-
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
-
I have my maxed amount of epidural shots of my cervical DDD....(and no one cares about my lumbar DDD)..... I've done physical therapy, muscle relaxers, Amitriptyline, Nortryptiline, desipramine.....narcotics... So I decided to go to a spine specialist and they have me on Gabapentin. Its been two weeks and it did nothing for my lumbar ever... but it did seem to help my cervical and arm/hand pain...