I have lots of sources but the best thing to do is to type in Bladder Cancer in Google and research from the links you will get. You will get many. Check out www.uoaa.org which is a support group for people with stomas. Joiin the group type in your question or problem and you will get tons of very helpful information. They have some very dedicated and knowledgeable monitors. Your father will come home with a ileal conduit (Stoma) Google Ileal Conduit.
The hard part will be after the surgery of finding a WOCN ( wound nurse who knows STOMA's). He will need help applying the appliacne, getting supplies, and learning to do it himself. It is not hard,it just takes time. In the meantime start your research, get samples of products from the various companies;they will be happy to send you samples as they make a lot of money if you use their products. If more info is needed send me Email at pauls09165@hotmail.com

I have lots of sources but the best thing to do is to type in Bladder Cancer in Google and research from the links you will get. You will get many. Check out www.uoaa.org which is a support group for people with stomas. Joiin the group type in your question or problem and you will get tons of very helpful information. They have some very dedicated and knowledgeable monitors. Your father will come home with a ileal conduit (Stoma) Google Ileal Conduit.
The hard part will be after the surgery of finding a WOCN ( wound nurse who knows STOMA's). He will need help applying the appliacne, getting supplies, and learning to do it himself. It is not hard,it just takes time. In the meantime start your research, get samples of products from the various companies;they will be happy to send you samples as they make a lot of money if you use their products. If more info is needed send me Email at pauls09165@hotmail.com
Hope you find support dealing with this.

Thank you so much!
I think my mom is going to learn to care for it, because as it is now when he has a catheter she flushes it out to keep it from clogging and stuff. Glad my mom is good at this stuff!
Thank you for your help. :)

Go to BladderCancerWebCafe.com My husband was diagnosed in Oct. '06 and had his bladder removed in Dec. '06. He was very fortunate and had a "neo-bladder" - so no bag. No matter what your dad has, the Bladder Cancer Cafe is full of wonderful, educational, supportive advice. It's a great place for the family members too. Good luck.

I had my bladder removed 7 years ago due to urethral cancer that spread to my bladder. I have a continent urinary diversion. I have been through chemo twice and radiation once. Please make sure your dad gets to a doctor that has experience in bladder reconstruction. It is worth traveling if necessary. I am also a member of UOAA and the people and connections have been very valuable.
God Bless.

hey....I am a 36 yr old female and had my bladder removed in Dec, 08. It really seems like the end of the world but its not. The surgery is major and the cut is really the only healing. I have a stoma which is where they pull part of your small intes. out thru your side and you have a bag. You have no feeling in the stoma and honestly I really haven't had to many issues once I found the right type bag for me. Sleeping has been my main issue. I use to be a belly sleeper and that is no more. If you want to talk further let me know.........

Check out www.uoaa.org a Stoma suport group. Great info after you get your stoma or neo bladder.
I have urostomy so not much help with a Neo.

I am replying to the post about night time and sleeping. I use a night drainage bag, and a velcro strap to the side of the leg the stoma bag is on. I can not sleep on stomach, but can sleep on either side. You just hqave to remember to be sure your hose is not tangled. I keep the night bag in a bucket in case of leaks but actually have never had one. I have pulled the night tube out when squirming around.
I use a coloplast mini bag at night and this reduces the bulk and length of the night bag. Works great for me.
If you need more info just post.