finallly an answer, not a particularly good one but an answer all the same to some of the questions. PT said that because it has gone on for so long untreated that my only option is surgery. I have to allow this to sink in. She accessed the results of my MRI which doc probably had when I saw him last Friday but he never thought to mention because hey, I was there for recurring mouth ulcers/blisters to do with the still unknown auto immune disease that they suspect. Heaven forbid that he may have to think of two things at once.
She (the PT) was stunned at my lack of treatment but she did say, as I have always said that because I look very healthy, do a lot of exercise, am always in good form, and all they saw was a fifteen year old diagnosis of Fibro and dismissed all other symptoms.
She said that the weakness of my left leg indicated that there is probably a trapped nerve in the lumbar spine also. let them all join the party.
In many ways it was a huge relief to have somebody ask me 'does the extreme pain in your arm/hands wake you up?' Hell yes.
She was astonished that i am as mobile as i am given the crap state of my spine, hips and knees (thanks to my mother's genetics) which I have been telling the medics about for years.
Luckily thanks to my daily exercise routine I have retained much movement that I would have otherwise have lost had i a sedentary lifestyle (thank you, my love of swimming and walking and my morning stretches outside my kitchen window!)
She was so much more pleasant than the last time I went there much to my relief and her kindness was an absolute balm.
Fibromyalgia was an incorrect diagnosis which she described as a 'lazy one' as they did not order an MRI fifteen yrs ago or blood work or anything else (even a simple balance test) which could have given me more time before or even if surgery became necessary.
Yes, I am angry. Yes, I am upset. But I am so relieved to no longer be dismissed as yet another BP person with issues caused by PTSD or anxiety or stress or whatever they might have decided. (probably genetics combined with all the heavy lifting my father made me do when I was way to young to do it).
The exercises she suggested I have actually been doing for years apart from one called 'flossing' which exercises the legs and the neck at the same time and can be done while sitting down. I have always exercised my ankles/feet so now I just have to add in neck exercises too.
I am also happy that she emphatically stressed 'you are far too young to have to use a cane, this should never have happened' but added 'don't tell your gp I said that, most docs think they are gods!' lol
what a joy to meet an actual human being. I see her again on Jan 7th.
Today I made an arrangement to call the office manager of another GP practice and arranged to call a different GP in the morning for an appointment. Fortunately she told me I had to try and change GP's before Jan as once the local guy leaves they will freeze medical card patients and I will be unable to move until they appoint a new one for my locale.
I only hope that I can find the 'change GP' form that the dept sent me ages ago so that the doc I hope to see tomorrow or thursday will take me on. He is wonderful so fingers crossed. My second choice is the practice that I have to call the office manager about.
SO. Please wish me luck in my quest to get away from the one across the street. The extra drive would be absolutely worth it.
Too much to take in.
Funny Ha Ha, she also said 'you need to see an orthopaedic surgeon' and we both laughed when I told her I saw one who didn't bother doing anything, saw I had BP and he said 'You need to see a rheumatologist' and sent me home.
Can't wait to see him again!
Thanks for reading this far. many, many hugs and thank you for all the support here which has sustained me throughout this craziness.
I think I have learned helplessness. I heard the term awhile back. Here's the Oxford definition: a condition in which a person suffers from a sense of powerlessness, arising from a traumatic event or persistent failure to succeed. It is thought to be one of the underlying causes of depression.I have an appointment with my therapist this week so I'm going to ask her about this and what can be...
it is 5am sat. and i am so relieved that this week is over. I ended up after about 1 and 1/2 hrs sleep leaving here on wed morning. The drive there was actually fun - new fentanyl patch the night before meant a little of the edge off the pain at this point! Got to the hospital with no problems and everything went downhill from there. GP got it wrong and there is no more carcinoma but consultant...