Bell's Palsy Support Group

Bell's palsy (facial palsy) is characterised by facial drooping on the affected half, due to malfunction of the facial nerve, which controls the muscles of the face. Bell's palsy is the most common cause of acute facial nerve paralysis and affects about 40,000 people in the United States every year. Additional symptoms that may accompany the condition are pain around the ear and loss of taste.

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Fatigue

Does anyone have extreme fatigue with their BP?

I am so wiped up just getting up in the morning.
I was bedridden about 15 yrs ago with Chronic Fatigue Syndrome, wondering if it has triggered that or if fatigue comes with BP?

Thanks!

Replies

deleted_user
deleted_user

I was tired, but it was just emotionally. Being pregnant the last week and the new born and Bells on top of it. I was DRAINED!
It might be something that you had early years too. Ask your doctor if you are concern. But I don't think Bells it self made me fatigue just going thru it and the stress of it.
But it effects everyone differently.
deleted_user
deleted_user

I was told that fatigue was definately a symptom of BP. I recall a day or so before getting BP and many days after having BP, I was so tired so often. Remember, your nerves have seen a lot of trauma and your body is fighting. Therefore, you are going be more tired, more quickly.

Hang in there. So far, nothing unusual is going on here.
luckienyc
luckienyc

that makes sense! thanks :)
deleted_user
deleted_user

Guess I am lucky. Having narcolepsy I am always that way so this symptom is nothing new and I am already taking meds for the EDS.
If fatique is a major problem you might find some useful advice on how to improve it on some of the sleep disorder sites and especially on some of the sleep disorder forums on here.
deleted_user
deleted_user

You'll want to go to the neuropathy group and look for the topics on "autonomic" the best place to start is a topic called "directory of topics" at this link.
http://dailystrength.org/groups/neuropathy
deleted_user
deleted_user

Yes, day 40 here and I still have periods of real fatigue. Fell asleep in front of the TV two nights in a row I was so wiped. Other days I am fine.

On the good side, I can now RINSE after brushing. I can finally hold water in my mouth without it dribbling out like some spastic idiot. Treasure the little things. And I have maybe 50% or better recovery of movement on the left side of my face. Wrinkles and smile lines - yeah!

On the downside, I still can't close my eye without closing the other one and it STILL waters a lot, sometimes A LOT. It fills up with tears and blurs my vision. Constantly. It can make even little tasks an annoying frustration. That's enough to tire you out right there.
deleted_user
deleted_user

3 months with Bells and I get up and do a few things and find myself totally exhausted.
I thought it was from after being on steriods for a few months and was a side effect of just getting off of the steriod highs that make you restless. I did start taking vitamins again I hope it helps me to get stronger.
deleted_user
deleted_user

I am glad to see this discussion. My hubby asked if I would check to see if this was a problem with others. He is 81 days in to BP (first and hopefully last time). Headaches gone after 30 days, eye / vision still a problem with sight and watering, but he is always very tired. Hoping this is a symptom that will go away soon. Any recommendations? B12?
deleted_user
deleted_user

I was absolutely wiped out for 3-4 weeks, then slowly regaining my energy back. I am at 3 1/2 months and have about 50% movement back in my face and about 90% of my energy. My fatigue is exacerbated by the fact that I have an infant and haven't slept through the night in....well, honestly...years. BP definitely affected my entire body for a while.
luckienyc
luckienyc

Hi

My fatigue has gotten better, but I still get knocked out some days...
I did take B12 tablets but slacked off. Not sure if that helped, but what did was TONS of sleep and just rest.
My face is 100% - I would say after 6 weeks I didnt have to tape my eye at night - it took another few weeks to settle back.
I still get headaches/migraines from time to time...
Rest is best, if you can take the time...I had already been off of work so it worked out....though it set me back financially.. I believe it helped by recovery - good health is more important!
deleted_user
deleted_user

I also have been suffering from exhaustion with the onset of my BP. Many doctors commonly believe that a virus attacks the nerve, resulting in the BP. Perhaps many of us have a mono-like virus affecting that nerve? If the virus theory is true, it might be the infecting virus that is making us so tired?
deleted_user
deleted_user

I was also wondering if fatigue was a big factor of BP. I was fine to begin with, when first diagnosed but after 4 days im starting to feel like i cant find the energy and waking up is the hardest, trying to keep my open after being closed for hours.

The doctor said i was fine to go to work to, as i thought it would keep my mind off it. But im beginning to think that maybe i should cut my hours down just to get more recovery time?
deleted_user
deleted_user

The mono comment is I think very accurate. I had Mono in College and since then it has recurred several times and it is the likely candidate for the pericarditis I have had twice. Now this. Stupid Mono.
Mono is caused by the Epstein-Barr virus which is similiar to the chronic fatigue virus. Begins to explain the exhaustion possibly.
Anyway, my face is no loinger falling off of my skull so I am grateful. Now I just need to get past the contant sleepiness.

Hmmm... should I tell a small fib to make the story more exciting and say that I fell asleep twice while writing this? I didn't but it adds drama and humor, haha.
docsteph
docsteph

I have had BP since last March. The smile has improved, but I am seeing the contracture symptom of long term BP. And I am extremely fatigued. Lots of sleep helps if I stay down for a day and do nothing.
vitamins. Mornings are best , but afternoons, i drag around.
and the symptoms worsen when I am tired.

chiropractic care has helped from the get go. I use eye drops and steroid eyedrops once in a while. What I have noticed that is odd is not a diminished sense of taste, but increased and salty. I am so glad to read the comments on this forum. I laugh as I drool a little still and can't whistle anymore. Thanks for listening.
rocknroll123
rocknroll123

Just wanted to thank you for starting this thread. My Doctor has been very helpful but didn't mention the fatigue. I'm 3 weeks along and am back to work the last couple days. The fatigue started to lift after the prednisone treatment and I started walking every other day (with my eye patched) which I think helped me build up my strength. But I still get really tired at times and today I feel totally wiped. It's good to know this is a normal symptom and I trust things will get better soon. Patience is really important I've learned.